Alexis BushnellI've just asked my MP to attend the debate on Ehlers-Danlos syndromes and cranio cervical instability. It's very easy to email your MP too via https://edsuk.eaction.org.uk/makeitmatter
Thank you so much for your help.
Rachel Wright@alexisbushnell I've also written to my MP, and boosted your toot.
@virtuosew thank you!