Ben Harris-RoxasA new paper I was involved with is out. We reviewed 90 studies on health literacy for people with intellectual disability, their supporters and healthcare professionals. The main finding was it's relational, not individual, distributed across people, relationships and systems - not a skill you either have or don't.
The bit I keep thinking about is that our Lived Experience Reference Group asked why we hadn't captured independent decision-making (we'd focused on shared decision-making). They were right and we went back to answer that.
Open access paper in Health Expectations. Led by my brilliant UNSW colleague Maryann Barrington with a genuinely great team.