TamsinMar 16
Anyone with Celiac disease out there know if it is possible to get a kit for testing food for contamination (in the UK)? My daughter's blood tests show she is consuming gluten but we buy certified gluten free everything and are super careful with chopping boards etc.
#Coeliac #Celiac
Show threadBrendanMar 16

@tamsin Another option (because testing food is expensive) are 'gluten immunogenic peptides' or GIP test kits.
These can only test retrospectively, but allow you to look back at what you have eaten / where you have been and then infer likely sources of food contamination.

(I found it was a game of cat-and-mouse for the first couple of years, and A LOT of filtering out well-intentioned but uninformed misinformation)

Show threadTamsin
@brendan oh thanks! this would def help as much easier than trying to organise blood tests at GP every so often to check if we have found the culprit. I did not know this was a thing.
Mar 16 at 5:53pmWeb
Show threadBrendanMar 16

@tamsin I don't know if you've already looked into this, but a small number of people with coeliac disease react to the protein (avenin) in oats.

(More importantly, I hope you can find the source of the exposure, those first couple of years are stressful having to read everything with a magnifying glass and still second guessing yourself)

Show threadTamsinMar 16
@brendan she does eat a lot of (GF) oats, so she'll be upset if it's that! Do you know if you can buy the GIP tests you mentioned in the UK? I'm not having much luck finding any
Show threadBrendan6d ago
@tamsin Sorry I can't help there, I'm in Australia.