Beware a month of travel and pushing past your exertion limit may chronic your fatigue more than normal.
It's like a month of Post-Exertional Melaise has been stored up & dumped on me the last two weeks.
It's no surprise, I did this to myself, but that doesn't make it any more pleasant when it hits.

Mostly just sharing to highlight / represent invisible disabilities.

I have Long COVID / Chronic Fatigue /
Post-Exertional Malaise

It'd be very easy to see my timeline and think im healthy & everything’s amazing all the time.

When I'm fine I seem "normal" but that's because l've done a load of work managing my energy budget, leaving early, adding multiple rest days into my calendar, & having very slow months during bad periods

Obviously I can't ignore the fact that l'm able to manage it so well because of my privilege.

I'm financially stable, have a relatively good safety blanket, and my online work and freelance schedule are flexible enough to work around it all.

If I had to work a 40 hour week to afford to live then I’d have no room to accommodate it never mind recover.

And thats how most people with this kind of thing have to deal with it, especially with the govt making disability assistance harder to get, & barely/not recognising disabilities like this!

What about you?
I have a visible disability
4.2%
I have an invisible disability
47.5%
Actually what I have might count as a disability
28.1%
I have no disability
20.2%
Poll ended at .

@mattgrayyes I'm somewhere between the lower two - or at least I think so?? 

(I'm genuinely unsure and I can't be arsed to see if I actually have a disability in some way, shape or form, but I'm suspecting that there might be something™)

@mattgrayyes

my partner is also affected. She is unable to walk more than ~50 meter, beyond that she needs an electric wheelchair. She is also unable to work at the moment.

@mattgrayyes are we counting glasses? (maybe that’s the third option?) 🤔
@LucasWerkmeister @mattgrayyes this. I was unsure how to answer, then realized glasses are a visible indicator or a vision disability, but it's so accepted in society that most people don't think about it as a disability. Maybe because it doesn't require other people to accommodate or make changes for that particular disability.
@karaksindru @mattgrayyes yeah, I remember when Stephen Hawking died there was a cartoon going around that showed him at the pearly gates and god (or st peter?) helping him out of his wheelchair – and then someone pointed out that the cartoonist had still drawn Hawking wearing glasses, because apparently he didn’t need to be “freed” from *that* assistive technology 
@LucasWerkmeister @mattgrayyes I guess it depends how much or little you can see with or without them...
With glasses I'm above 100%, but that does include having to switch to reading glasses or multifocal lenses. This doesn't really count, I'd say, annoying as it can be... But then my eyesight really is not great if I don't have the glasses and it does impact my life at times.
If you show a colour gradient from red to yellow, at which point does it turn from red to yellow?
@mattgrayyes actually I should say I have a visible disability - I wear glasses.

@mattgrayyes idk about chronic fatigue (i am so god damn tired all the time) but my eyes are pretty fucked (to the point where I just can't function day to day without glasses, I think it's around 20:100 vision or worse)

eyesight is a fun one since it's visible(well, if you're wearing glasses) but also doesn't really feel like a disability, maybe since it's so common? but its definitely disabling without help.

@5225225 @mattgrayyes yeah i voted invisible disability because while my eye issues are Visible they are also not limiting to me (they correct my eyesight to approximately what is supposed to be typical, with some quirks and exceptions that rarely come up for me). my connective tissue disorder is far more limiting and for the most part you can’t see it
@5225225 @mattgrayyes is this why neurotypical society likes contact lenses so much
so they don't have to deal with the visible indicators of someone else's disability

@mattgrayyes rheumatoid arthritis, autism, and ADHD

(my autism doesn't often feel like a disability, but I have to remind myself how much therapy it took to get here)

@mattgrayyes Is it still visible if nobody notices the sound processors for my implant?
@mattgrayyes I put glasses in the third bucket, since it feels like a "solved disability (if you have the money for proper glasses)"
@mattgrayyes
I have invisible disabilities
@mattgrayyes I mean besides the crippling ADHD and the probably autism and the memory loss and the periodic fatigue and the gastrointestinal fuckery I was born deaf in one side and had reconstructive surgery to create a kinda really bad interpretation of a full sized but non functional ear that also left me with a hole in my chest that’s brought me nothing but pain and discomfort for 25 years as my now semi detached rib slowly wonders off and nobody ever notices my ear anyway…. Uh..
@mattgrayyes fatigue is new ( though I did used to crash out with migraines every single weekend in hindsight maybe from masking all week ) but both covid and having multiple extremely active kids have relatively aligned timescales so it’s probably just severe burnout. Wait, are we doing disabilities or trauma dumping here?
@mattgrayyes Let's just say that I have more than a few invisible things. Having an inability to have fructose AND lactose in the United States is already bad enough, but having basically everything in the DSM as well as effectively having dyslexia AND exercise-induced bronchoconstriction, as well as light sensitivity is also bad. And this is only scratching the surface. I have quite a few other stomach issues. Also my intersex condition is only visible to intimate partners for whatever difference it makes

@mattgrayyes I have a visible & invisible disabilities. I visualize long covid symptoms on @illmarks

For folks who aren’t sure if they are disabled or not—I recommend looking into the redesigned disability pride flag’s meanings, and see if any sections resonate with you.

Additionally, disability justice has no hierarchy of disability, the more of us there are, the better we can support and advocate for each other. 💜

@mattgrayyes That last one should include (yet) at the end.

@mattgrayyes age is becoming a disability:

* bad eyesight
* body does not heal as quick
* body can't do the same intensity or length of effort as before
* back pain :)

@mattgrayyes similar to you, Long Covid/Chronic fatigue. Plus breathing difficulties (suspected asthma but not properly diagnosed yet). Currently working a 32h week fully remote which is still enough to completely wipe me out 🙁