Mastodawn

May 12 is the annual Millions Missing protest in DC, where people with ME/CFS and #LongCovid and related disorders demand appropriate care and research.

My late partner Beth Mazur was one of the originators of #MillionsMissing and the first protest was, I believe, in 2016, marking this as the event's 10th year...her legacy lives on.

https://www.meactions.org/millionsmissing2025

Take Action for ME/CFS

For #MillionsMissing 2025, #MEAction is sending out an SOS.

Me Actions

"May 12th is Myalgic Encephalomyelitis Awareness Day. On this day, the millions of people with myalgic encephalomyelitis (#MillionsMissing) gather to demand recognition, research and clinical care for people with ME. This year we are fighting to save the infrastructure that is so critical to our lives—access to healthcare, research funding, open science, and accessibility services and information. #MEAction encourages all people with disabilities to join this fight."