My nystagmus is so bad today I'm having to lie around with a wet washcloth covering the top half of my face.

The coolness might be helping or maybe it's just having nothing to see is helping. It is So Goddam Boring not being able to look at anything!!!

So much of managing a chronic condition is dealing with how boring it can be though. Especially if you have to rest when you don't want to/when other conditions need other things.

#DisabilityLifestyle

Anyway, happy Nystagmus Awareness Day.

I wrote a kind of FAQ about nystagmus a while ago: https://cosmolinguist.dreamwidth.org/892793.html

cosmolinguist | The Nystagmus Tag

@bright_helpings Thank you for sharing this! Do you know if it's possible to have occasional nystagmus from ME/CFS crashes? We have occasional /something/ from crashes, for sure, and your description sounds very familiar. We call it "wandering eyes".
@bright_helpings it is so boring and takes up so much time and energy.
@bright_helpings this is so fucking real. Hoping the boredom is tolerable today 🖤
@bright_helpings oh my god right? so much of this is so boring!