Okay something I've been thinking about.
Disclaimer: These are my own thoughts about myself, which are often confusing, but in no way have anything to do with how you feel about it yourself. This is mostly me working out feelings and trying to get context. I'm curious what other people do with these kinds of thoughts.

I have a disease that is sometimes under control, and other times it is not. It can cause Chronic pain, that can be anywhere from a mild annoyance to stuck in bed. But if you asked me, Do I have a disability, my instant reaction would be No. I know logically that it totally meets the parameters, it can really interfere with my life when it's bad, but it's not something that is visible, so a huge part of me says, you're not allowed to claim that. Now this is silly, I know a lot of disabilities aren't visible, and I would never discriminate against someone else because they don't have a visible disability. Another part of me is afraid of the label, not because I have a problem with it, but once you use that word, people look at you differently, they start making assumptions about you, they start thinking they can give you advice or decide your worth. And I feel like a wimp, because it's brave to say Hey, I am disabled, but often I don't feel "disabled" and I realize, like fuck, I'm falling into this trap of deciding what a disability means. I feel pulled in different directions, I'm a person with issues, disability will be a part of everyone's life at some point, I'm just me. For people who rely on someone else to decide if they're "disabled enough" to get the tiny amount of income their government provides this is a whole other bucket of hornets. Then you're forced into telling strangers intimate details of your struggles so you can support yourself and your family, with a really good chance of being denied. I mean, Fuck, it's hard for it to not sound like a bad word when you're treated like a criminal for health issues. I'm rambling on, so I'll just ask:

So, how do you all feel, does the label bother you, empower you, something entirely different? Tell me your thoughts!

@RickiTarr I'm severely hearing impaired since birth. It's only recently that I started accepting that I am disabled.

It was never called a disability when I was young. It was as if "disabled" was reserved for people with visible disabilities. The stigma of that label is real.

But it *is* a disability. It has a profound effect on how I navigate the world. There are many things I cannot do or enjoy. I am disabled, and there's no shame in that. But I, too, feel that doubt about using the term.

@Tom @RickiTarr I have age and noise exposure related hearing loss, as much as 60 dB at some frequencies, described as “profound” loss by audiologists. Yes my expensive hearing aids do very well in some situations but it’s not perfect and enjoying music isn’t the same.
Do I consider myself disabled without my hearing aids? Perhaps I should. It’s not recognized the same as other disabilities or blindness. It is a loss of a sense: does the IRS recognize that?

@bouriquet @RickiTarr Yeah, hearing aids are helpful, but not a cure-all the way some people assume they are. There's still several times a day I have to ask people to repeat themselves, even when I'm wearing them. And just wearing them can be exhausting, as they amplify Every. Little. Sound.

Canada has a disability tax credit that I didn't know about until my audiologist suggested it. I qualified for it. You might want to see if the US has one that they don't advertise.

@Tom @RickiTarr Even the really good digital ones do some good noise reduction in some modes but they really have trouble in rooms with more reflected sound like plaster walls since the microphones are in the back.
Some people’s voices are not as clear as others no matter what.
Use hearing protection when younger please! Concerts, power tools etc
@bouriquet @Tom @RickiTarr Yup, me too (age + occupational loss also tinnitus) I use Phonak rechargeable aids that bluetooth to my phone which has the Phonak app installed. I can to a limited extent set specific programs that override the “automatic” functionality. Detuning them to reduce unwanted high frequencies was key. Useless for streaming music no bass. Am I disabled? Without them: yes, no question. With them I can manage it and life is normal.