The text of my letter to my unwanted passenger, as requested to write by therapy person (CW cursing):

Dear Scleroderma,

What the actual fuck?

I don’t want you on this ride. Apparently I can’t kick you off. So could you fucking behave? We can’t do constant bathroom breaks or hospital stays. I need to use my hands. So put on these headphones, listen to a podcast or some music, watch the scenery and fucking keep to your seat and behave.

Sincerely,
Your fucking host, me.
#chronicillness

@jesswynne

I hope that helps on a few levels. 🌸

Not sure I can write one at this point. If things went well, we have booted 11 organisms. There isn't a cure for the 12th. But--it kicking off occasionally may have kept me from working myself to death.

So it is a strange, alien ally, in some ways. 🤔

@KatKimbriel Making myself laugh about it was definitely a good. An edge of perspective.