Mastodawn

🅰🅻🅸🅲🅴 (🌈🦄)Jul 28, 2023

Is autism self-diagnosis valid? Yep. 💜

Hey all, after reading dozens of research papers, and meta-analyses, and living through it, I made a thing!

I'd love it if you'd check it out! 🥰

https://codeberg.org/alicewatson/asd-self-dx/src/branch/main

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Update: I replaced the header image, now people can complain about the actual research instead of the thumbnail.

Also, before any more guys respond with gatekeepy opinions about my conclusions, try reading the paper first.

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@actuallyautistic #ActuallyAutistic #Autism #ASD #Trans #SelfDiagnosis #SelfDX #SelfDxIsValid #Research #Codeberg

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Dave the Nomad

Jul 28, 2023

@alice
Thanks for putting this together!

There's a study in your doc that suggests RAADS-R isn't accurate enough to predict diagnosis... I found that interesting because I had read the complete opposite, that it was one of the most accurate and valid tests.

I feel a rabbit hole of my own coming on 😀

Thought you might like to add this to your compilation!

"The RAADS-R proved to be highly accurate in discriminating between subjects with ASD and those without a DSM-IV-TR diagnosis and with another DSM-IV-TR diagnosis (sensitivity = 97%, specificity = 100%, test–retest reliability = .987, accuracy = 98.5%,)."

Source:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3134766/

@actuallyautistic

The Ritvo Autism Asperger Diagnostic Scale-Revised (RAADS-R): A Scale to Assist the Diagnosis of Autism Spectrum Disorder in Adults: An International Validation Study

The Ritvo Autism Asperger Diagnostic Scale-Revised (RAADS-R) is a valid and reliable instrument to assist the diagnosis of adults with Autism Spectrum Disorders (ASD). The 80-question scale was administered to 779 subjects (201 ASD and 578 comparisons). ...

PubMed Central (PMC)

@nomadave
Sooo RAADS-R seems to have moderate accuracy but needs further research due to concerns over false positives (overdiagnosis) which ADOS, while better, also struggles with

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8992806
https://pmc.ncbi.nlm.nih.gov/articles/PMC8452438/
@alice @actuallyautistic

Examining the Diagnostic Validity of Autism Measures Among Adults in an Outpatient Clinic Sample

Previous research has questioned the validity of diagnostic measures for autism spectrum disorder (ASD) among adults. This study examined the correspondence between several measures and clinician diagnosis. We conducted a retrospective chart review ...

PubMed Central (PMC)