Kerim YasarJan 16, 2023
Augie Ray

This huge #COVID19 study should spark change, but sadly, it won't:

Most long COVID cases are in non-hospitalized patients with a mild acute illness

Debilitating illness occurs in at least 10% SARS-CoV-2 infections

At least 65M individuals worldwide are estimated to have long COVID, with cases increasing daily

Significant proportions of individuals are unable to return to work, contributing to labor shortages

There are currently no validated effective treatments

https://www.nature.com/articles/s41579-022-00846-2

Long COVID: major findings, mechanisms and recommendations - Nature Reviews Microbiology

Long COVID is an often debilitating illness of severe symptoms that can develop during or following COVID-19. In this Review, Davis, McCorkell, Vogel and Topol explore our knowledge of long COVID and highlight key findings, including potential mechanisms, the overlap with other conditions and potential treatments. They also discuss challenges and recommendations for long COVID research and care.

Nature
Jan 16, 2023 at 10:33amWeb
Show threadSean DJan 16, 2023
@augieray I suspect many of those who are able to return to work are less productive than they could be, but this is unlikely to ever be reported.
Show threadMJJan 16, 2023
@augieray I have long covid but it turbo charged an autoimmune disease. It's taken me 2 years to feel humane again but fatigue and my autoimmune disease are appallingly difficult to cope with
Show threadAugie RayJan 16, 2023
@mazjay I hope your progress continues. Sorry it's such hard and long work!
Show threadAmphibiousnickJan 16, 2023
@augieray but the economy, right? 🤦
Show threadCarrieB ☕🐱 📚Jan 16, 2023
@augieray I got to 'Fig. 1 Long COVID symptoms and the impacts on numerous organs with differing pathology.', and had to stop for a bit. Why? Because both myself, and my husband, have all but 2 of the symptoms listed. We both had what doctors consider to be 'mild' cases of Covid, back in May. We're still learning about what Covid actually caused to change in our systems. 
Show threadAugie RayJan 16, 2023
@CarrieB I'm sorry. I hope you are on the road to recovery. We're learning more about Long COVID every week, so I hope treatments and care improves for you this year.
Show threadCarrieB ☕🐱 📚Jan 16, 2023
@augieray Thanks. Unfortunately, where we are (in the high Sierra-Nevada mountains), local medical services are limited to a small 3-person clinic, 4 days per week. In order for us to get solid medical care, we need to travel a minimum of 51 miles south to get to the nearest city that has medical care available for Covid - outside of stay at home self care. 
Show threadAliSnarkbarJan 16, 2023
@augieray I can see a future in research grants to study it and find a cure or at least look for one.
Show threadHalcekJan 16, 2023
@augieray Those people who need it, should be provisioned with a #basicincome.
Show threadRyan SchultzJan 16, 2023
@augieray Long COVID is something which terrifies me, and I still think it's worth avoiding getting COVID by any means (and that includes getting all my booster shots as soon as I can, wearing facemasks in public shared spaces, and practicing social distancing where appropriate).
Show threadCleo of Topless TopicsJan 16, 2023
@augieray
I've been wanting to do a YouTube video covering the last two and a half years of long covid symptoms I've been experiencing, but haven't bothered because they'd probably ban it as "medical disinformation" for having the word covid in it.
@Lazarou
Show threadSimonJan 16, 2023
@augieray Thank you so much for posting this. I am 4 weeks into my first Covid infection. I have loss of hearing which isn’t mentioned but Fig1 is just horrifying really. In the UK I just don’t think this is even close to general public knowledge. People are existing in a bubble of ignorance.
Show threadNgati Pakeha KuiaJan 16, 2023
@Danio1972 @augieray I think it’s wilful ignorance. Most people don’t read the published information re COVID complications and just think if they ignore it, it doesn’t exist. People who take precautions against contracting COVID are labelled alarmists.
Show threadAshley PorciunculaJan 16, 2023
@augieray Also many of us don't get diagnosed with Long Covid. We get diagnosed with the stuff Long Covid causes, or the mild underlying conditions we didn't know we had that Covid slammed into overdrive. My life's been turned upside down by something I didn't know I was born with, that could have just stayed under the radar, if Covid hadn't activated it.
Show threadgeoffreygevaltJan 16, 2023

@augieray thanks for posting. As a dad of a performing musician who caught Covid three years ago and still is not up to performing and is adapting to perhaps never playing music in public again (her last gigs were with Glen Hansard and, in her duo, opening for Bela Fleck and solo concert at Carnegie) I am deeply interested in what is being learned about this virus...and the others it seems to be kicking up.

Thanks so much for posting.

Show threadAugie RayJan 16, 2023
@gg I'm very sorry. I'm a former musician myself, and i can't imagine how hard that must be. I hope she finds a road to recovery. Hansard gave a free concert six blocks from me a few weeks ago, but i wouldn't go because of the crowds.
Show threadgeoffreygevaltJan 17, 2023

@augieray Thanks for your best wishes.

It has been difficult, almost tragic, but she has a saint for a partner and has slowly found docs who don't think she's crazy and who have a bead on what's going on but, still, no idea what to do about it. She, like thousands, millions even, are among the growing invisible disabled in our country.

I admire her ability to adapt and make good of her 60-percent body as he turns to writing and writing music and smiling as best she can.

Show threadMuro deGrizecoJan 17, 2023
@augieray If even a few people read it, those lives are still helped.
Show threadÚnaNíCJan 17, 2023
@augieray None so deaf as those that do not want to hear, unfortunately.