LongCovidPharmDNov 28, 2022
Told my dad for first time that I have #MECFS yesterday (via email). I had not mentioned it to him for all the years I've had it because I knew he wouldn't care, but even so, I am a bit surprised that he completely ignored that part of my email & only replied to non-health stuff I'd written. It really is pathetic. Sucks when you're chronically ill & have so little support from family & (former) friends. Would love someone to swoop in and rescue me from this misery somehow but alas...
Show threadEmpathy1stNov 28, 2022

@LongCovidPharmD

I'm so sorry. It's harder when it's family who's doing the ignoring. Sometimes I wonder if it's because people shut down when they feel helpless and don't know what to do.... but it's still not an excuse.

Show threadLongCovidPharmDNov 28, 2022
@Empathy1st Thanks. Unfortunately no, he just genuinely does not care about me, never has. I've always known it, but it would've gone a long way had he at least acknowledged what I'd said with something as simple as "That sounds bad." This is just a few days after my partner openly mocked me (mimicking my voice while saying "the doctors think it's psychological, they don't believe me!") and called my health problems "psychosocial." I don't have energy to waste convincing people I'm sick.
Show threadBlobNov 28, 2022
@LongCovidPharmD @Empathy1st Omg that's horrible and so toxic, so sorry to hear that :L
Show threadLongCovidPharmDNov 28, 2022
@brobbeh
yeah, it's really toxic. I desperately want to get better so I can get myself in a better situation. This is hell and completely unsustainable.
Show threadBlobNov 28, 2022
@LongCovidPharmD Know that the community cares and believes you, and we really appreciate your efforts to get new info and share it! Hang on tight.
Show threadLongCovidPharmDNov 28, 2022
@brobbeh Thanks, I'm in a bad crash now but hope to get out of it soon so that I can go back to helping the community. There's so much I want to be doing right now but last week or so has been brutal.
Show thread[email protected]
@brobbeh @LongCovidPharmD I hope you are doing a bit better now.
Dec 20, 2022 at 11:23amWeb