Courtney🤸♀️ WyrtzenI've managed to string together some sustainable recovery from #LongCovid after 29 months of debilitating symptoms. It's been a multifaceted and complex journey. At month 14 I was hopeless & barely functional. Step by step, I've gotten some life back though nothing is the same. Hoping to connect with other #pwLongCovid #AMA @longcovid
Tim Gent@ItsJustCty @longcovid that's great to hear. What would you say is the biggest influence on recovery? Pacing, medicine, attitude or just time to recover?
@tgent_fens @longcovid Pacing has been huge but to even be able to figure out pacing I had to go on a strict Low Fodmaps, NO Histamine diet (this allows for only about 16 foods). Then, with that little bit of relief from body aches, I did 3 mos of in-home physical, speech, occupational, and neurological therapy (I had to take leave from work for this, thank you #CARESact), then building sloooowly from there some important med interventions (will private DM this), after EECP *huge* improvement.
@tgent_fens @longcovid THat is the bare bones summary of my sustained recovery from #LongCovid , lots of stops and starts along the way. I mask up against #COVID and #Allergens because of #MCAS. I AM in a #LongCovid clinic & have insurance, this helps a LOT.
Sharrow_irl@Sharr0w @ItsJustCty @longcovid I'm wondering if it's possible on this group to start at list of treatments people have had, what symptoms they address, what success and where available. Is that a good idea? Would prefer to check with experts it's not been done / would be legit thing to do. Thoughts? #LongCovidTreatments
@tgent_fens @ItsJustCty @longcovid I would reccomend the #LongCovid Handbook https://www.amazon.com/Long-Covid-Handbook-Gez-Medinger-ebook/dp/B09VKJ7W4P
vicyarri@tgent_fens @Sharr0w @ItsJustCty @longcovid I’m new here, but a pharmacist with long covid @LongCovidPharmD has done tons of work on this, previously posted on the 🐦 place, has been massively helpful to me and others.