ICYMI: The June newsletter from PigPen 🐷🖋️ went out last week.

➡️ Why bother registering even if you don't intend to vote

➡️ Reports from the #NSPKUConference

➡️ Help out with #BrainInjury #Research

➡️ Update on #TheRedHatStories #Kickstarter

https://buff.ly/4bIm6jg

#LivingWithPKU #LivingWithMildBrainInjury #RareDisease

Next report from the #NSPKUConference held May 2024, a juicy update on the review of the #EU Guidelines for #PKU

This session touched on #PheLevels, #NewTreatments, #NewbornScreening, #Clinic recommendations, the #Cost of PKU, and much more!

https://buff.ly/4byUGfD

#LivingWithPKU #RareDisease #phenylketonuria #PCU

As much as I loved the NSPKU conference, I'm happy to be back home with a toaster that toasts toast to my standards.

The one at the conference looks like it would toast bread to a crisp, but then it was just lightly cooked?!?!?

#nspku #NSPKUConference #NSPKU2024 #nspkuconference2024

Here are some of the photo albums of the NSPKU conference 2024:

https://photos.app.goo.gl/g5jCVEKoUFAFAxv96 - what's in the pipeline

https://photos.app.goo.gl/DtCGiA39D1sQuqyB8 - mRNA therapy treatment

https://photos.app.goo.gl/bwgCwNRpxd5xk2Ls9 - European Guidelines

https://photos.app.goo.gl/ZbdW5YbXuYgKDZNT9 - NSPKU Campaign 2024

#nspku #NSPKU2024 #NSPKUConference #nspkuconference2024

Back home, and I can't believe I have to cook my own food again 😭😭😭😭

#NSPKU2024 #NSPKUConference #nspkuconference2024 #pku #phenylketonuria #pku

🇮🇳 Achievement unlocked. Just sold #LivingWithPKU in #India! 🥳 This book is now helping people in 13 countries.

Plus, if you are in the #UK, you can now buy direct via Shopify. This helps you with 10% off, and helps me with more support (££!)

Thanks all, looking forward to seeing some of you at the #NSPKUConference this weekend

#PKU #NSPKU2024 #RareDisease