ICYMI: The June newsletter from PigPen ๐Ÿท๐Ÿ–‹๏ธ went out last week.

โžก๏ธ Why bother registering even if you don't intend to vote

โžก๏ธ Reports from the #NSPKUConference

โžก๏ธ Help out with #BrainInjury #Research

โžก๏ธ Update on #TheRedHatStories #Kickstarter

https://buff.ly/4bIm6jg

#LivingWithPKU #LivingWithMildBrainInjury #RareDisease

500: We've Run Into An Issue | Mailchimp

Next report from the #NSPKUConference held May 2024, a juicy update on the review of the #EU Guidelines for #PKU

This session touched on #PheLevels, #NewTreatments, #NewbornScreening, #Clinic recommendations, the #Cost of PKU, and much more!

https://buff.ly/4byUGfD

#LivingWithPKU #RareDisease #phenylketonuria #PCU

Review of the European Guidelines on PKU (Phenylketonuria)

The guidelines...help inform policy changes and establish the best treatment practices in places where those are still being developed, and to support those in areas where treatment falls short.

Pig Pen

As much as I loved the NSPKU conference, I'm happy to be back home with a toaster that toasts toast to my standards.

The one at the conference looks like it would toast bread to a crisp, but then it was just lightly cooked?!?!?

#nspku #NSPKUConference #NSPKU2024 #nspkuconference2024

Here are some of the photo albums of the NSPKU conference 2024:

https://photos.app.goo.gl/g5jCVEKoUFAFAxv96 - what's in the pipeline

https://photos.app.goo.gl/DtCGiA39D1sQuqyB8 - mRNA therapy treatment

https://photos.app.goo.gl/bwgCwNRpxd5xk2Ls9 - European Guidelines

https://photos.app.goo.gl/ZbdW5YbXuYgKDZNT9 - NSPKU Campaign 2024

#nspku #NSPKU2024 #NSPKUConference #nspkuconference2024

Into the Future Treatment Research into PKU - what's in the pipeline

25 new items ยท Album by Soheb

Google Photos

Back home, and I can't believe I have to cook my own food again ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ๐Ÿ˜ญ

#NSPKU2024 #NSPKUConference #nspkuconference2024 #pku #phenylketonuria #pku

@poconnor asking the important questions at the #nspkuconference ๐Ÿ‘
Game on! Excited for the first talk. #LivingWithPKU #NSPKUConference #NSPKU2024

๐Ÿ‡ฎ๐Ÿ‡ณ Achievement unlocked. Just sold #LivingWithPKU in #India! ๐Ÿฅณ This book is now helping people in 13 countries.

Plus, if you are in the #UK, you can now buy direct via Shopify. This helps you with 10% off, and helps me with more support (ยฃยฃ!)

Thanks all, looking forward to seeing some of you at the #NSPKUConference this weekend

#PKU #NSPKU2024 #RareDisease