So that was my first working day after two weeks of sick leave. My latest MS flare seems to be pretty much over, tomorrow I'll take the last dose of 25 mg Prednisone, I sleep ok, my heart rate is... ok and the brain fog has liftet.

Also looks like I did not acquire new permanent numb spots anywhere on my body like last time, but time will tell.

On Wednesday we'll do one last round of blood tests: Hepatitis, HIV, Immunoglobin etc etc - and once the results are in, we *hopefully* can start with the Kesimpta therapy. And fuck the missing vaccinations, we'll do that later; it's pure damage control and risk comparison now.

#MultipleSclerosis #MultipleSklerose #MyBodyIsTryingToKillMe

2nd day in a row I sleept for ~6 hours. I think I call this a win, looks like all that Prednisone is really flushed out of my body.

From all the Prednisone side-effects I find two things most disturbing: The totally fucked up sleep pattern - and the weird high hear rate. Even though the manual says it causes bradycardia - a SLOW heart rate - my body paradoxically decided "fuck this, TIGER, RUN!" so that I have a heart rate of up to 120 BPM *while sleeping*.

I just hope these effects will settle in the next days...

#Prednisone #MyBodyIsTryingToKillMe

Ok even though I took my last Prednisone yesterday, it gave me a huge fuck you farewell; again, only 3h of sleep, resting heart rate of 120 bpm all night (a "paradox side-effect", as it usually cause bradycardia) and a really really bad stomach.

Fuck this, I call in sick. Someone else may take the Hero of Labour medal.

But... Officially the therapy of that suspected 2nd multiple sclerosis flare-up is over. The specialist are still brooding over MRI images (which shown typical lesions in brain and spinal cord), blood- and liquor samples (which show antigenes only found with specific auto immune disorders) and other telling signs.
But from tactical importance: All symptoms from that last flare are gone, now just side-effect management. (I think I will make me a merit badge for that; "15 years of successful medication side-effect management")

But it really looks I won another chronical illness! Dang, epilepsy, cerebral palsy & other weird shit ain't enough, give that slacker something to do! 🤣

#Prednisone #MyBodyIsTryingToKillMe #chronicalillness

Looks like the fallout of Prednisone boost therapy is past the peak of side-effects. But... Went to a professional to get my toenails clipperd, I had an inflammation which did not show! That could've escalated real badly.

But my sleep schedule seems to become better. Had perhaps 6 hours of uninterrupted sleep. Was much shittier the past weeks.

Also fasting glucose level was a fucktastic 69 mg/dL. That is pretty much my "normal" level. I guess that my adrenal glands are finally picking up their work again and starts ignoring the extra Cortisol levels? At least the liver seems to be unimpressed, lol.

My body is not a single organism, it's a fucking committee!!

#MyBodyIsTryingToKillMe #Prednisone #chronicalillness

Prednisone, you asshole. I go to bed with a glucose reading of 92 mg/dL, and now, 12h later before breakfast, fasting glucose of 102 mg/dL (3h after waking up).

Come one!

#MyBodyIsTryingToKillMe