Not much to update but I'm here. I'm following treatment. I've put back some of the weight I'd lost, so that's one win.

I can't travel anytime soon, so I have tickets to Boston Calling, I'm so excited. We'll have to figure out accessibility but yay!

I'm still sick and scared and unable to tolerate solid food. I've resorted to ordering Jell-O from Amazon so I can at least have more of a variety. Nobody can tell me if this is just... my life now or if I'll have remission/flares.

#gastroparesis

Update on my #health...

Most days it's just, "Yeah, still feeling gross, but doing my best," and why post the same thing every day?

But today, I had a test that led to a diagnosis: #gastroparesis. My body simply isn't digesting food at a normal rate.

Just getting a diagnosis is a good thing. I don't care why, I care what we do next, and there are treatments I can follow now. Slowly -- I'm still on the IV nutrition and my labwork is still not great -- but it's a start.

Visiting Nurse says everything looks good, vitals are in good range, continue TPN-only (total parenteral nutrition, i.e., IV only) until I talk to the nutritionist tomorrow morning.

So not "OK cool let's stop with the treatment" but rather "good, it looks like the treatment is working, keep doing what you're doing."

I cried. So weird being treated like a person.

This is what 25 pounds gone looks like. Tired, gaunt, but home.

And Willem continues to be amazing.

I'm really, really sick and no one knows why. It doesn't seem to be an infection, more like nerve damage.

I've lost 25 lbs over the past 6 weeks. I miss podcasting desperately, but I also miss sitting up, eating, hugging my family, etc.

I was released from the hospital yesterday with a PICC line (like a durable IV) so I'm getting fluids at home.

Send vibes. Send GrubHub credits for my family to [email protected]. I'm so defeated and terrified but I haven't given up.