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Weekly Check In A Week Late (TW: Death-Replies may be NSFW)

https://lemmy.world/post/5688804

Weekly Check In A Week Late (TW: Death-Replies may be NSFW) - Lemmy.world

I’m sorry I’ve been unavailable for a few weeks. I missed last week’s check-in/update post because my mom passed away from Huntington’s Disease two days before I would usually post it. Obviously, the days just before her death were also very difficult and I was not around much then, either. I knew she would need me to help her through this someday, and I worked hard on my mental health so I would be prepared. I think it worked out well for me because even after a week of sitting by her side as she declined, I still feel like I set her free more than anything else. My wonderful and capable co-mods were here, holding things down and making sure everyone was safe and supported in my absence, but I was not really paying much attention to Lemmy for quite a while. I am feeling more ready to return to small doses of such things, so here I am, asking for your updates. How are you? What’s been happening in your life since your recent posts here? Is there anything you’d like to talk about with the community but don’t want to make a separate post about?

Update on me - Lemmy.world

I’m sorry I’ve been not available for a few weeks. My mom became increasingly unable to eat her food properly over the last few months, and as we hit September, started to refuse food or drinks of all kinds. This was not unexpected as her Huntington’s Disease progressed, but it really threw me emotionally when her nursing home confirmed we were at that point. Around two weeks ago, I was asked if I wanted to consider a feeding tube for her, and given that she had known this was a possibility and made her opinion on the matter VERY clear, I said “No.” I was able to use her Neurocare Unit room as a hospice of sorts, as we settled in for 7 days of her refusing food and fluids, and only saying yes to medication for her pain. She was very focused and peaceful through most of it. It was obviously a very difficult time, but I am honored to have been able to fulfill the promise I made to give her a comfortable death with family at her side when she chooses to let her life be done. My mother passed away last Friday at 11:35 pm, at the age of 66. My journey with her had many highs and lows, but my love had no limits.

Weekly Check-in (Post is not NSFW but comments may be)

https://lemmy.world/post/4436766

Weekly Check-in (Post is not NSFW but comments may be) - Lemmy.world

How has everyone been since they last posted? Is there anything we can do as a community to help you? Is there anything you would like to talk about but don’t want to make a whole post about it? I’d love to hear from everyone if you are feeling up to responding and chatting about how you are doing.

It's a new month! How was everyone's August?

https://lemmy.world/post/4258343

It's a new month! How was everyone's August? - Lemmy.world

I can’t believe September has crept up on us already! I went on a road trip with my husband and my best friend a few weeks ago. The car ride was 10 hours long. I can’t drive anymore, so hubby has to do all of it. I had to put many pillows around and behind me, and also ban air conditioning in the car unless the internal temperature was over 75 because it hurts so much when the cold air blows directly on my body. I enjoyed the trip and visiting with my friends. I hadn’t seen them much at all since Covid started because it’s often not safe and they don’t put me at risk just for a visit. Sometimes I’m amazed that my husband has stuck with me for so long given the fact that he would happily live in a refrigerator and I would happily live at over 80 degrees all the time. We make it work by having separate bedrooms. It’s very important when you are “thermostatically incompatible” like we are.

I agree! Some of my favorite things are petting dogs, smelling babies, and making comfort food in vintage or good-eough-quality-to-pass-down-to-my-chidren cook or bakeware. Making the most of the things I already have in my life always gives me a little boost.

The Top 20 Things That Make People Feel Good–And a New Positivity Bench in London

https://lemmy.world/post/4214190

The Top 20 Things That Make People Feel Good–And a New Positivity Bench in London - Lemmy.world

What do you think of the list? What makes you feel good?

20 Great Blogs About Living with Dementia or Alzheimer’s

https://lemmy.world/post/3782960

20 Great Blogs About Living with Dementia or Alzheimer’s - Lemmy.world

There are some great blogs written by both caregivers and those who experience dementia here.

I’m sorry you’re finding job hunting so difficult. I tried for about six months to market my services as sort of a consultant/assistant and though I knew I was more than capable of doing the work, finding someone to actually hire me was very difficult. I ended up taking a job with an agency that did the same work in order to bridge the gap a bit, and after I was done with that job I returned to traditional work because I decided that the “marketing yourself” part of freelance work was not for me. It’s difficult to even find a job because there are so many applicants for every position. For a traditional in-person job it’s not so complicated.

When I decided to go back to work I used a temp agency. I think it’s a good idea for you, as long as the person who is working with you understands your limitations. Here’s hoping they have something available that is flexible and has fun and understanding people at the worksite. It sounds like you could use a win, and a confidence boost.

Trans-Resources --This is part of our LGBTQ+ Pinned Post, but I wanted to make sure it's visible on its' own because it's a great site with local resources that you can search by location.

https://lemmy.world/post/3726255

Trans-Resources --This is part of our LGBTQ+ Pinned Post, but I wanted to make sure it's visible on its' own because it's a great site with local resources that you can search by location. - Lemmy.world

Trans-Resources aims to help transgender, non-binary, and other gender non-conforming people find resources where they live. Our goal is to be a directory of advocacy organizations, legal resources, support & social groups, and other resources that service the trans community.

First-ever Weekly Check-In Post (NSFW just in case comments require it)

https://lemmy.world/post/3529318

First-ever Weekly Check-In Post (NSFW just in case comments require it) - Lemmy.world

How has everyone been since they last posted? Is there anything we can do as a community to help you? Is there anything you would like to talk about but don’t want to make a whole post about it? I’d love to hear from everyone if you are feeling up to responding and chatting about how you are doing.