Giorgia LupiJan 31, 2018
Hi vis! I am sharing a personal project I’ve worked on that was really heartfelt: https://medium.com/@giorgialupi/bruises-the-data-we-dont-see-1fdec00d0036
I called it The Data We Don’t See. You can read all about it at the link. I am not sharing it for publicity, I am really interested in what you guys think about experimentations like this, be candid. :)
Bruises — The Data We Don’t See – giorgia lupi – Medium

Clinical records alone hardly capture the impact the illness of a child has on a family. This is how we used music and art to understand…

Show threadenjalot
@giorgialupi this is amazing. I'd love to hear more about the meditative aspect of data collection and the collaboration process of making it visual. Data collection can be daunting/boring and even scary when it's medical. here it was healing. did you guide her on collecting the data? did she share early samples for you to think about/experiment with? I loved seeing what you came up with but I imagine the "how" has a lot to do with the trust between the two of you?
Jan 31, 2018 at 7:51pmWeb
Show threadGiorgia LupiJan 31, 2018
@enjalot thank you for your thoughtful comments, very appreciated! I started to help Kaki collecting these data (figuring out together what would be the best type of info to observe / categories etc) to find a way to be in control - for what possible. During the process, the daily observations (as she told me) made her feel she was in charge in a way, and became a powerful tool to use with different doctors. She is not in this vis channel but you can reach out to her on twitter an ask directly!