"My son suffers from pulmonary fibrosis… a harsh disease that slowly steals the breath from his chest.
Every breath he takes has become a battle, and every day that passes we thank God that he is still with us.
My heart breaks when I see him struggle just to breathe like any other child. His dreams are simple… to live without machines, to run, to laugh without losing his breath from exhaustion.
But this disease is cruel, and its treatment is very expensive. We are trying with everything behind."