Over 9 years since I went to my doc complaining of reactions to scented products postpartum. 8 years to get a MCS diagnosis (& Sjogrens as a side quest), and another year to get MCAS. It feels validating but anticlimactic. I am already doing all the stuff. Many of my questions were answered with "we don't know." I was hoping that a diagnosis would open up a knowledge bank. I was also hoping for treatment options that I haven't tried. No luck but at least I'm on the right path.
#MCAS
@ThunderHoneySnow can I ask which speciality of medicine diagnosed it?
@EdibleFuchsia Allergist with a specialization in MCAS. That said, that has been the consensus of the other docs I have seen over the past year, so it wasn't surprising. But finding someone who had the "authority" to diagnose took time.