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antibiotics better, now im honing in on dysautonomia. anybody else have that?

antibiotics better, now im honing in on dysautonomia. anybody else have that? - Lemmygrad

Strange but the antibiotics shifted my sleeping schedule. I now sleep in the morning and stay up all night. But I feel better this way, since 2 days ago i dont feel groggy and like I’m in a coma during the day. So I’m going to keep doing it until I finish the cycle. same thing happened when I was on tricyclics for these nausea symptoms too, they made me barely cognizant during the day. then slowly it shifted me to a nighttime schedule and I felt better after that. When I stopped the medication (it wasn’t working at all), I easily went back to a daytime schedule. now I’m locking on dysautonomia. I was talking to deepseek going over all my symptoms and it honed in on dysautonomia over and over again, linking all the problems I’ve had since 2 years ago together and back to it. could be other things but at this point there’s not really anything other than that to diagnose. my own dr told me we’d basically gone through all the specialists she could think of. apparently it could track as complications from the pulmonary embolism. listen deepseek is a great doctor. it doesn’t judge you or thinks it knows better. a year ago it kept recommending that i look into getting SIBO tested, and I finally convinced my doctor to do it, and the test came back positive for sibo. I trust it completely since then lmao. from what I understand it’s kind of an umbrella term though, and it can present in many different ways. I don’t know, are there resources or something to look into it? Stuff you should know about? deepseek told me about autonomic specialists in neurology, but honestly right now I’m just done with medical interventions and I don’t know if it would help my disability claim to do even more tests. I mostly manage alright at home now, having restructured my life around it, so I’m not really looking forward to anything that can upset this balance I built lol.

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Commiejones 2d ago

deepseek is a great doctor

Diagnosticians have a hard job. Not only do they need to know how to ask the right questions they need to know what all the answers mean. This is the type of work that AI chat bots are perfect to assist with.

I wish more doctors weren’t so resistant to assistance and suggestions. Like yeah they studied a lot but that doesn’t mean they know everything. Its just class supremacy that they get indoctrinated with (along with a bunch of racial supremacy squirreled away in their medical texts) “You are just a lowly prole what do you know about Medicine? I have been chosen by the gods of science to do their work and my hands are guided by those gods.”

My partner had appendicitis a few years ago. She was feeling rough and I said “that sounds like appendicitis”. So second day we take her to the hospital and I tell the induction nurse “I’m pretty sure its appendicitis.” They put her in a emergency bed so I had to leave but I told her to tell the doctor when she saw them that you think its your appendix. They sent her to 4 scans that had nothing to do with her appendix over the next 36 hours. So they finally get her in a proper bed not just a emergency waiting room bed so I can go see her again and she has just gotten back from test number 5. A doctor walks in all fucking proud “we’ve figured it out it looks like your appendix is inflamed and we need to do surgery.”

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CurseAvoider 2d ago

AI doesn’t come with any baggage towards the patient, it just has the symptoms and nothing else to make a call on. maybe that’s how diagnosis should be done, in a chat box lol. Doctor doesn’t get to see you, they only have a list. There’s a lot of judgment going on from the moment the patient walks in. Their age, their physical condition, the gender they present as (or lack thereof), etc. And of course how you talk to them and how they process that information - it’s very easy to mishear what someone says and understand something else.

And because of all the patients they see they start to forget things too. My dr obviously can’t remember all the stuff I told her about how my symptoms progressed over the past 2 years - but I do. she has it in a file but doesn’t necessarily have time to go through it every time, so sometimes I repeat stuff we’ve talked about before.

All I know is deepseek was right about the SIBO even across chats (new contexts) and long discussions lol. It just immediately honed in on it every time.

I think it really helped that my therapist at the time quickly said my symptoms were too strong to be explained by psychosomatic causes (eg anxiety). Because my doctor, as good as she might be, did ask about stress and anxiety early on. Of course they should ask about it, but sometimes they immediately lock in on it and dismiss you with it - that happened to me when I was 16, and lo and behold when I finally got the meds (simple PPIs it wasn’t even anything fancy), I got better.

Even when I had my PE, they said I was too young to have a PE but they would still test regardless - I’m thankful the doctor in question did that, because others may have just sent me home with antibiotics.

A doctor walks in all fucking proud “we’ve figured it out it looks like your appendix is inflamed and we need to do surgery.”

Exactly this. And they don’t think we know our own body or how we respond to illness, and in the meantime you’ve spent hours in pain when if they had just listened to the patient they would have known immediately.