it's #LongCovidAwarenessDay and i don’t think i have posted the whole of what this thing has done to me in one place, so here it is.

Yesterday my dad asked if i had “gotten over” long covid yet. uh, no, i’m afraid not. it doesn’t work that way.

i got covid in january of 2022. we had been very careful but we are at risk because of my partner’s retail job. he masks at work and we rely so hard on that mask. it is really scary to worry about getting it again. retail workers should get hazard pay.

it messed up my lung capacity and i lost my ability to sing. it is still not 100% but is better than it was. i used to enjoy singing into my synths but i had to stop and learn to make sounds other ways. i was in choir for years, singing was something i really enjoyed. but also, even just singing in the car, singing a stupid little song to the cat, were too hard. i was out of breath. it felt like a big part of me was taken away.

it messed up my emotional regulation and ability to control my temper for about a year and a half. it was very, very scary. like i was one of the Flying Wallendas walking across a tightrope and a guide wire snapped. Swinging from 0-100 at the drop of a hat. Ruining my relationships.

i’m often in a fog and struggle to deal with everyday stuff. a lot of things that were on my to-do list in early 2022 are still waiting on the list.

1/2

i can sing a bit now after over a year of exercises, and the emotional and cognitive things are going a bit better. these things are still not 100% and are only better because of work i did on my own. nobody helped me or believed me.

The worst was that it unmasked a pretty severe autoimmune condition (if you read my posts you already know all the inflammatory arthritis complaints). the short version is i can barely leave my house due to pain and inflammation. the medication i now need to take ironically puts me at a higher risk of getting infected again.

i should be living my life, making stuff, doing things i want to do and making plans, but i am at home, in pain, dealing with bone-deep fatigue a lot of the time that makes me feel like much of my sense of self has been taken away.

i was not considered "high risk" before i got covid. and i only got it one time.

2/2

it's been three years since i had covid, the one time.

i am slowly slowly recovering my mental and physical health, but my immune system is still attacking my body in various ways.

i wish so much that people would protect themselves and others, but most have gone back to their "normal" lives and it is really difficult to stay in relationships with people while this elephant is in the room

four years since i had covid originally. i'm finally starting to do stuff i used to enjoy again, that's four years of cognitive recovery. i wrote a bit about it on my neocities page so that'll be this year's update https://forestine.neocities.org/cvid

#LongCovidAwarenessDay

Long Covid | Flesh Husk | The web site of forestine

@forestine omfg this

“They all said, "Well it won't happen to me," and expected me to carry a cognitive dissonace around them. I kept trying to tell people I loved that they didn't want this. This was worse than anything they could imagine. But I couldn't get anyone to take precautions and protect themselves, and that was and continues to be one of the most painful things.” 😭

Thank you for your writing — still in the middle of reading but that just. Thank you for putting words to it.

@moss thank you. glad and sorry you can relate 💖

@forestine I am so lucky I have never had covid. I live alone, work at home, and always* mask in public spaces.

*Exceptions being the dentist and hair salon.

I appreciate posts like yours (tho sorry you've had a rough time) because they reinforce that letting down my mask is not a great idea.