RE: https://mastodon.social/@grimalkina/116144078270105346
Hello. I wrote this after fighting through to another appointment with a new specialist and I got a sudden opening with them and THEY HELPED. A LOT. THEY UNGASLIT the situation and validated a ton of things I'd documented on my own and been bouncing around providers trying to get someone to believe. They did the right test and now we have very significant empirical evidence about something critical.
Do not give up
I do understand. I had my first (onset) Fibromyalgia flare-up before it was a trusted diagnosis. The first rheumatologist, who are responsible for testing for it, called it a "garbage can diagnosis." It was over a year later, when I had to stop working, that I got sent for a second opinion to a rheumatologist that knew what he was doing. Then I had to educate my PCP on treatments I was reading about as there really wasn't much. At least he was willing to learn.
Always fight!
Cat Hicks
Spiritual Annie ☮️