I have Raynaud's Syndrome. Occasionally, my fingers will lose all circulation.

https://lemmy.world/post/14336337

I have Raynaud's Syndrome. Occasionally, my fingers will lose all circulation. - Lemmy.World

Samesies! Happens almost anytime Iโ€™m drinking a cold drink.
Whatโ€™s the risk of them dying and falling off?
Unless itโ€™s a very severe case thatโ€™s not likely, for most people itโ€™s just uncomfortable. Raynaudโ€™s does make you more vulnerable to frostbite though.
Exactly what Lemmenym said - they wonโ€™t fall off, it usually passes within 10-15 minutes.
Have you tried turning your fingers off and back on again?
That appears to be exactly what they are doing.
I have this happen sometimes when it gets cold out. My fingers may turn this shade or just bluish purple. Warming them, rubbing them, etc seems to bring them back.
Primary or secondary? Mine is most likely secondary to lung disease but I also have a family history of primary Raynaudโ€™s. Got any good glove recommendations?
Primary. And my best glove recommendation isโ€ฆ a mitten! When the fingers are kept together in one chamber, they are warmer. And if one or two go โ€œrogueโ€ the other ones can warm them up. But of course you lose dexterity with mittens.
I lose dexterity anyway and get pain as arthritis like symptoms. Thatโ€™s why itโ€™s probably secondary despite the family history and it starting in my teens. Mittens are a good idea, thanks. I usually wear isotoner driving gloves under heavier gloves while outside in winter. That way I can take the heavier gloves off when the heater starts warming up the car.

I use a number:

  • Silk under-glove that is useful in a lot of general circumstances around the home. I need a new pair as I bit the top off one finger.
  • Thinsulate fingerless gloves. These are my general go-to glove and I need a new pair as my original one are getting a bit frayed.
  • Driving/cycling glove. They work with touch screens and are sensitive enough for most tasks when I am out and about.
  • Ski glove - for walks in the cold.
I get this and my Dad suffered from it too. Itโ€™s all pretty unpleasant but I have raised my glove game and that has really helped.
How do you get it circulating again? Is it the same kind of pins-and-needles you get when a leg falls asleep?
I actually have this too! For me, it usually happens when my extremities get too cold, and it can take me a bit to even notice itโ€™s happening. It usually happens predominantly in my big toes for some reason. For me it just feels like like itโ€™s gone completely numb, and I lose all feeling in the digit. I usually break out the heating pad and try to warm it back up until I can feel it again.
I stick them under my husbandโ€™s arms and steal his warmth. Or if he is not available, Iโ€™ll use warm water or just my own body parts that are warm.
Men are portable heaters that snore
Mine doesnโ€™t snore, must be a defective unit. But Iโ€™ve grown quite attached and shall be keeping him.
I take procardia as needed in the winter; works loke a charm
My best mate has this. Iโ€™m always worried!
The only time I would worry about it for myself is if Iโ€™m out in the cold without any protection, and I have to stay out there for a bit. Otherwise, it usually passes before any serious damage can be done. I think you are an awesome friend for caring so much!
You can offer to suck their fingers a little too help puno the blood
My mom gets this but not very often.

Ditto. She always called it โ€œpoor circulationโ€ and explained itโ€™s genetic. Didnโ€™t know it warranted a name.

I always blamed these particular genetics for my cold induced urticaria.

My wife has this as well
it only happen to your hand?
Yes, only to my fingers. I suppose itโ€™s possible that itโ€™s happened to my toes, and I just didnโ€™t notice.
Is this similar to waking up at night when you cut off circulation to your fingers and theyโ€™re cold and you canโ€™t move them? Or is that just me?
Feels a bit like that, yes.
How do you manage to do that?
Believe it not, boner pills help. Theyโ€™re vascular dilators.
A friend works in a pharmacy and thereโ€™s a woman who goes there who gets Viagra for it. Might nor work so well for me
Boner pills can make your fingers go numb?
Booze is also a peripheral vasodilator, just sayin
Itโ€™s just you. Everyone has a super power and thatโ€™s your.
How do you do that to just your fingers? For me itโ€™s usually the whole arm from somewhere between the shoulder and elbow.
Sounds like a different issue. There is one that arms go numb if hands held above head for a minute. That was can be helped with the right exercise. (But see a doctor for diagnosis if it bothers you.)
Thanks for your concern! Itโ€™s not super bothersome. I think I just sleep weird. I toss and turn a lot and end up in less-than-ideal positions.
Sounds like pressing on a nerve/cutting off blood flow, which isnโ€™t usually serious
Your nose or ears are ok?
They do get cold, but I donโ€™t know if they ever lose circulation like that.
This happens to me rarely. Very scary the first time it happened
Yes, first time I freaked out, called my doctor. I thought something very bad was happening!
Same, happens sometimes to a few of my toes while driving for a long time, had it happen once with one of my fingers
I get this on my toes on cold days. It always freaks me out even though I know whatโ€™s going on.
This thread suggests there are enough people around with it to warrant starting a community.
Donโ€™t waste it and go rub one of!
This made me laugh, thank you.
I get this if Iโ€™m shopping in Waitrose. I think itโ€™s from gripping the shopping cart so tightly whilst looking at the prices.
Does it hurt? Can you still use them? Are there adverse risks?
It does hurt, starts out as a numbness and then there is a some mild pain. And then pins and needles when the blood comes back. I can still use them but it doesnโ€™t feel the best. The biggest risk Iโ€™m aware of is frostbite if I am out in the cold. I like to have gloves or mittens with me at all times when itโ€™s cold out.
That really is mildly interesting. Thanks for the explanation. Hope you are well!
My hands and feet are nearly always cold. Maui, sunny day sitting on the beach, cold feet. My hands never look quite as radical as yours, but the dermatologist says itโ€™s Raynaud. When I have to handle frozen food or whatever it literally hurts in my chest. Kind of a lot. Do you get that too? โ€ฆ Weird how I sometimes forget to ask the internet about this stuff but I just googled and apparently chest pain isnโ€™t uncommon.
Chest hurting sounds bad. Not a Dr but have Reynaudโ€™s exacerbated by ADHD meds and havenโ€™t experienced chest pain. Are you sure it directly follows handling frozen food etc? Could be related or coincidental - so many things can cause chest pain, from harmless but temporarily hurty intercostal pain all the way to cardiac arrest. Other details (weight, age, genetic history, other medications/treatments, smoking/drinking/substance status) also matter so itโ€™s worth bringing up with your doctor, unless youโ€™re in America in which case just ask ChatGPT.