Hello fediverse, lil cry for help: I’m looking to speak to someone with vitelliform macular dystrophy caused vision loss, so I can ask about their experience with the onset of symptoms. I was diagnosed ~3 years ago and until recently hadn’t experienced symptoms, I believe I now am but would love to chat to others about their experiences. Compulsory masto disclaimer: I’m not looking for advice other than the specific ask above, thank you. Boosts much appreciated 💖
@j_g_fitzgerald as far as I can see (from the Big Hashtag Search), there are no posts on that hashtag. Are you seeing otherwise?
@joenash No. This is how you get started. Now people can find your messages using that hashtag.
@j_g_fitzgerald right, thanks, that’s not what I’m looking for. Please kindly stop suggesting it
@joenash I obviously misunderstood your message. I thought you're trying to reach people who might help. Sorry for trying to help.