Hello fediverse, lil cry for help: I’m looking to speak to someone with vitelliform macular dystrophy caused vision loss, so I can ask about their experience with the onset of symptoms. I was diagnosed ~3 years ago and until recently hadn’t experienced symptoms, I believe I now am but would love to chat to others about their experiences. Compulsory masto disclaimer: I’m not looking for advice other than the specific ask above, thank you. Boosts much appreciated 💖
Not to be a dick when I’m asking for help but if you’re going to reply to suggest I add a hashtag, please a) suggest a hashtag that has any toots on it whatsoever and b) has anything to do with the condition in question.