JoeHello fediverse, lil cry for help: I’m looking to speak to someone with vitelliform macular dystrophy caused vision loss, so I can ask about their experience with the onset of symptoms. I was diagnosed ~3 years ago and until recently hadn’t experienced symptoms, I believe I now am but would love to chat to others about their experiences. Compulsory masto disclaimer: I’m not looking for advice other than the specific ask above, thank you. Boosts much appreciated 💖
Melissa@joenash happy to boost, but also ...try editing to add some hashtags? Best wishes from a mom of a visually impaired son!
@mtechman I was right up on the character limit unfortunately! But thank you for the recommendation, good reminder for me to go searching hashtags and see if I can find some folks.