Taylor LorenzNov 15, 2023

“Long Covid, a disease that studies have shown to have a quality of life worse than some end-stage cancers. We know it can be fatal. Many people with Long Covid have described it as a ‘living death.’

There are no cures, no established treatments, no financial support, and no incoming research funding despite the risk of Long Covid increasing with each COVID-19 infection.” https://thesicktimes.org/2023/11/14/welcome-to-the-sick-times-a-letter-from-our-co-founder-miles-w-griffis/

Welcome to The Sick Times, a letter from our co-founder Miles W. Griffis - The Sick Times

It’s not mysterious. A highly contagious airborne virus has spread around the world for the past four years and continues to infect people as I write. SARS-Cov-2 has killed an excess of 23 million people worldwide and plagued over 65 million people with Long Covid and other associated conditions.

The Sick Times - Chronicling the Long Covid crisis
Show threadSelenaNov 15, 2023

@taylorlorenz
'worse than end-stage cancer' seems like quite an accusation: cancer is the kind of disease where people can die screaming of pain, seeking the strongest opioids that science can give them.

If that's not long-covid it should not be suggested it is: things can be terribly bad and debilitating without resorting to 'worse than cancer' shorthand.

Show threadcraftycatNov 15, 2023
@Selena @taylorlorenz Yeah, I have to agree with this. There will never be a way to get anyone to take Long Covid seriously if people keep using hyperbole to describe it. The medical field does not deal with "this is worse/better than cancer", the medical field deals with actual scientific and measurable symptoms and issues.
Show threadLewis
@craftycat @Selena @taylorlorenz It's not hyperbole.
Nov 15, 2023 at 2:19pmWeb
Show threadcraftycatNov 15, 2023
@LewisHarrington @Selena @taylorlorenz provided that we even believe that a medical statement about what illness is worse is possible at all, I find it interesting then that the article itself provides nothing that would make such a comparison possible to begin with. The most common symptoms of long covid include long lasting fatigue, recurring fevers, headaches and neurological issues. I would love to see the scientific comparison between these symptoms in long covid vs cancer patients.
Show threadcraftycatNov 15, 2023
@LewisHarrington @Selena @taylorlorenz I am fully in support of long covid patients getting the medical help they need, I suffered permanent damage from covid myself that took years to diagnose, but this claim specifically has no medical relevance or proof and only make it more difficult to be taken seriously.
Show threadLewisNov 15, 2023

@craftycat @Selena @taylorlorenz I had a terrible headache and spent 3 yrs unable to do anything. I wanted death versus more of the same.
I was shitting blood too.
I nearly died of crohns previously and would have without help. I could not stand for blood loss from the ulceration and shit blood 23 times a day.

You don't know anything of real pain. You should not minimise what you don't know.

Show threadcraftycatNov 15, 2023
@LewisHarrington @Selena @taylorlorenz Crohns disease is not Long Covid and has never been classified as such. I would suggest not jumping into a discussion if all you're going to do is change the subject to fit your argument. Bye now.
Show threadLewisNov 16, 2023

@craftycat @Selena @taylorlorenz
Long covid often is actually an auto immune disease.

The average person has up to 47% more chance of developing auto immune disease post covid.

These can be very serious, terrible death causing diseases.
Also all the vascular problems and heart attacks.

Every infection puts a person closer to a living hell. The medics are awful at diagnosing auto immune problems thus many will live and die without medication.

You are underestimating.