Dare ObasanjoOct 7, 2023

Future generations are going to look at this generation’s laxity with genetic data and privacy in the sane way we look back at smoking, Jim Crow laws and fossil fuels.

You can’t change your genetic data like you can a password and once it gets out it not only affects you both your relatives and your offspring.

You carry a gene for a chronic disease that’s inherited? Now insurance companies know that about you, your kids and grandkids.

Unbelievable privacy self own.

https://arstechnica.com/security/2023/10/private-23andme-user-data-is-up-for-sale-after-online-scraping-spree/

23andMe says private user data is up for sale after being scraped

Records reportedly belong to millions of users who opted in to a relative-search feature.

Ars Technica
Show threadMark T. Tomczak

@carnage4life TBH, the right thing to do here is almost certainly to ban insurance companies, by law, from adjusting rates based on genetic condition.

Not that we shouldn't also protect privacy. But we've bent medical infosec around in ways counter to providing quality healthcare already (before ubiquitous cheap genetic testing) to avoid that outcome. Law can regulate markets; why not just ban the practice?

Oct 8, 2023 at 1:39pmWeb