Woman suffering from Long COVID saw no other option than to end her life.

"Bei Exit schreibt man auf Blick-Anfrage allgemein: Man stelle fest, dass sich vermehrt Menschen, die unter #LongCOVID leiden, bei der Organisation melden."

Exit is one of the Swiss organisations that offer assisted suicide. I have also gotten a membership this last winter.

[https://www.blick.ch/schweiz/erst-im-mai-gab-sie-blick-noch-ein-interview-daniela-caviglia-56-verlor-den-kampf-gegen-long-covid-id18825593.html]

Daniela Caviglia (†56) verlor den Kampf gegen Long Covid

Blick
Very few people seems to understand how humiliating it is having to beg for consideration and care, to be even taken serious with our awful disease. The organized abandonment we #LongCOVID sufferers experience every single day by politicians, media, our political communities, "friends' and family is often almost too much to take. Plus getting attacked, derided, coughed at when still wearing a mask. It is a relief to know to at least still have that option.

The more i think about this, the more my viewpoint is shifting.
Blick is the biggest newspaper in Switzerland, it's a tabloid. The paper has not written much about #LongCOVID over the past few years. But they decide to report this.

This does feel like a message.

[It is now behind a paywall, but this link should work: https://12ft.io/proxy?q=https%3A%2F%2Fwww.blick.ch%2Fschweiz%2Ferst-im-mai-gab-sie-blick-noch-ein-interview-daniela-caviglia-56-verlor-den-kampf-gegen-long-covid-id18825593.html]

12ft |

@antiaall3s I am so sorry to read this. I was lucky enough to recover after 9 months. Youβ€˜lol be in my prayers
@antiaall3s πŸ’”β€οΈβ€πŸ©Ή

@antiaall3s I understand it. It makes me absolutely fucking furious that society is driving people to the brink that this seems the only way to get any relief from it. I hate it and I wish it wasn't that way and I blame so many people and doctors and governments. But I won't blame any patients taking this option. I understand it.

I can't coherently express how sad it makes me to lose fellow disabled and chronically ill to this. It's eugenics at play: refusing care, making disabled die, and upping the suffering so much that those who survive will feel so unwelcome and bad and desperate that they will take themselves out.

Humans are the cruelest beings. I wish we would all resist and remain on earth until our last possible breath out of sheer spite, but I know the suffering becomes too great for many. If only people cared.

@begrudging_recluse This! I am not there yet, but it does feel good to have that option. It's when the gap of what could have or even should have been = the people resisting the normalisation of this disease and instead building robust mutual aid and communal care structures, and what is = organized abandonment out of eugenic reasons and a return to fascism, when that gap becomes so unbridgeable, not many options are left. But for now, we keep fighting.
@antiaall3s πŸ’™ ✊
@begrudging_recluse For now we keep fighting, but then, why would WE have to fight? It's not like people suffering from LC or ME/CFS have an abundance of energy!? Where is the radical left, who could build said structures? Oh, right, they are holding their gatherings without protective measures.

@antiaall3s I think men have barely shown up for women, white people barely fight for poc, and never has a high class person ever cared about a worker. The abled are not going to support us in significant ways, no matter how much they claim they're leftist and inclusive. It just fucking sucks that we have so little energy to do everything ourselves.

For now the disabled people with lots of energy are carrying us, as they have in the past, with trying to make things more bearable and accessible. I don't think it will ever be enough for a truly better world, but I feel strength in the knowledge that we have each other, and that we put this little energy we still have into carrying each other through for as far as we can. But I get that even with that, life remains nothing more than just painful survival for some.

Maybe it's not totally related, but I'm thinking of it now: last month I read 'Nebula Vibrations' by Annie Carl. It's a small sci-fi novella of only about 60 pages. I think the ending of the story gives such a feeling of gratification for anyone reading it who's sick or disabled. Stories like these keep me afloat too.

@antiaall3s I don't know if that makes it less or more depressing but we're actually many, many people who understand ❀️ Just spread out and isolated if not vocal online. Hang in there and resist. I'm absolutely convinced there will be relief other than death for many. The organizing around it is just so hard, for illness and disability and the care movement in general. A fight worth fighting when one can.

@read_and_riot We are many. But many of us also with severely limited energy resources.

https://chaos.social/@antiaall3s/110875882994628202

Anti. 🐘 (@[email protected])

Content warning: Assisted suicide, suicide, long covid

chaos.social
@antiaall3s I haven’t had Covid but I have MECFS and I’m getting to the point where I think I need some kind of hospice nurse. I don’t think I’ll be able to get one, but I was unable to eat through 25% of July. This month is a little better but I don’t even weigh 100 pounds. At one point am I starving to death and worthy of some kind of care?
@maggiemaybe This is devastating to hear. I really hope you receive the help and care. You deserve it. We all do. All care to all people.