It is annoying but literally anybody can cast immobilise on an autistic person by giving them more than one task and not giving them an order to do the tasks in.

Maybe that’s why we so frequently have demand avoidance and strict routines, it’s the only way we can make any kind of progress through each day.

Anyway, order decided: backup, floor, dishes

(Backup: requires computer to be on, best to do it before the room gets too hot this afternoon.

Floor: I’ll be standing on when doing the dishes, it’ll be unpleasant to stand on a crumb during.

Dishes: least urgent)

In theory I’ll never be stumped by this set of problems again, but in reality every day is different. I’m going to be stumped by this set of problems again.

(And even now I’m questioning the logic like “oh but what if I need dishes because doing the floor makes me hungry??”

Life is hell)

This morning I’m looking back at my medical history with things like “depression disorder” and thinking “it was probably just autistic meltdowns.”

then I remember that I am on antidepressants right now and don’t get super depressed even when I am burned out or having a meltdown. Medication that works is almost scary lol.

“Antidepressants? Why am I taking these? I’m not depressed!

…

oooooooh wait, I’m not depressed because I’m taking antidepressants. Got it.”

Just had my first ever dream where I went non-verbal and just switched to my AAC app for talking.

It’s super cool how quickly my mind has just gone “oh okay, cool, this is part of me and I can rely on it whenever I need to.”

Honestly I’m super grateful that I’ve been able to find my backup voice. Even though I don’t have to use it very often, having it there means I’m able to face more situations and know I’ll be okay in them.

Also, it’s fucking cool to be a cyborg that can talk through nearby machines.

Also also, I never fucked with voice training to begin with but if I feel like a change now I can just download a different voice lol

Since I've not talked about it in detail yet:

AAC is Augmented and Alternative Communication, basically any system to help people with difficulties communicating. This can be things like cards a person can display, to TTS (text-to-speech).

The AAC app I use is a TTS system that I can customise with common phrases and parts of sentences, type into for specifics, and easily display what I'm saying.

The app is super customisable, I can make my own categories and phrases in advance, colour them, give them pictures for their buttons, make the button display something different to the phrase (so I can have a button to say my address, without displaying my address in every conversation).

Link is here if you're interested, I use the android version which is free, but has some extra features if you pay: https://www.asoft.app/

(Changing meds while the seasons change)

WHAT THE FUCK ARE TIME AND TEMPERATURE!? THESE ARE COMPLETELY RANDOM PHENOMENA, THAT I REMEMBER THEM EVER MAKING SENSE IS SURELY AN ILLUSION!

Sometimes my body just decides to sleep and I have no idea when I’ll wake up or who I’ll be when I do.

Which might sound scary but mostly it’s inconvenient, I have things to do!

Like, if I recognise thinking “oh I was agitated before, but I’m fine now even though I’m in the same environment. I must have acclimated, awesome.”

There is now an alarm in my head that is like “WOAH. WARNING. WE DO NOT ACCLIMATE. YOU ARE DISSOCIATING FROM THE SITUATION. YOU ARE TAKING DAMAGE WITHOUT NOTICING IT. GETOUTGETOUTGETOUT.”

Which is useful information! But also it’s scary to know you’re fucked up and getting worse and that you won’t know how bad till later.

It’s fucked up that I get to do at most one thing per day, and how sometimes that one thing puts me out of commission for multiple days.

It is OP that some people can do multiple things in a single day. “Autism is a superpower!” Bitch you can’t say that to me when you’ve showered, done the dishes, and been to the shops all before lunch.

Also not super relevant rn but it’s on my mind: it’s fucked up that supermarkets with a quiet hour have just one hour a week and it’s at some complete dogshit time.

In theory it’s cool but honestly I think they are just picking a time when it’s not busy and deciding to save on lighting costs and paying someone to pick music.

It’s a beautiful evening, the sun is setting, its light shines through trees that blow in a gentle breeze, sending glowing dappled light into my room and FLASHING SO MUCH. I FEEL LIKE THE WHOLE UNIVERSE IS STROBING WHAT THE FUCK. THE FLOOR AND WALLS ARE WAVING?

Get the FUCK down out of the sky, sun! You’ve had your time today and I am DONE with you.

Finally watched Pixar’s Loop short, it’s really good! I especially loved the times it shows things from Renee’s view - I don’t think I’ve ever seen a camera move the way my eyes do before, focusing around whatever it is you’re actually paying attention to.

There is a meltdown in there and it’s definitely uncomfortable to watch but it feels true to me (though seems to come on much faster than I experience).

My friend said “How did you not realise you were autistic?” which is probably the best thing he could have said lol. Having people recognise my autistic traits and see them for what they are is actually really validating, and it’s a good question too!

The answer was because nobody explained what autism was, I was never given the opportunity to recognise it in myself. So having it recognised by myself and a friend too is super healing.

Something super shitty about meltdowns is they feel like they should be a reset. That they should just be a vent to release all the excess overload and afterward you’ll be ready to go again.

But it’s more like a whistling teakettle, you can take it off the stove and it will stop, but that water is still boiling hot, add even a little heat and it’ll go off again.

So something that I’ve felt on the periphery of some conversations with people who’ve known me for a while when I tell them about discovering my autism, is this idea that even “if” I am autistic, I shouldn’t give up on trying to be/act normal.

And after thinking about it for a while: yes I should. 36 years trying is long enough. I get to give up now. Give me a break!

I can understand that in some cases it comes from a place of genuine concern and care for me, for example when I mentioned that a lot of things that exacerbated my social anxiety were just autistic things, she worried I’d be like “oh I can just bail on all social interaction now.” and then in an emergency I’d be super helpless.

Truly understandable considering she literally housed me for years when I was agoraphobic and watched me work really hard to overcome it.

But yeah, I absolutely get to give up on trying to be normal or do things the normal way.

Also, “But you shouldn’t let it define you.” is literally the fucking worst for things that are integral to who I am. It is only ever used for things *other* people don’t want to think about or be aware of. How about I don’t let *you* define me, and then I can figure out who I actually am without the social bullshit.

All kinds of things are inescapable and define me, but I get to determine *how* they define me.

I’m not going to let someone else do it just because my definitions aren’t comfortable to “normal” people.

Sometimes I feel like autistic life is like living with a screaming child and you don’t know what it wants, but the child is you.

Today I’ve been feeling worse and worse and it got so intense I was trying a million different things and rushing around in a panic because I didn’t know what was bothering me and couldn’t cope. Then as soon as I tried my ANC headphones? The whole world was just “hi Sophie, welcome back.”

I’ve been trying to work on my self awareness so that I can tell when things are bothering me, and I’m definitely getting better at noticing there’s a problem before it gets out of hand…

But I still suck at telling just what the problem actually is unless it’s super obvious.

It’s like “great, for once I notice I’m freaking out. What the fuck am I supposed to do about that?” lol

What I want to say about this is: wow that’s really annoying! Most of the time I can see it’s something that really doesn’t matter at all, I can do things in whatever way or whatever order and it will be fine.

But it won’t feel fine! And I’m torn between different options and feeling bad about it for no good reason. Who cares if I turn left a little more than I turn right in a day? Literally nobody is wronged, but I’ll feel bad anyway.

One of the best things about finally knowing I'm autistic is I can add "autism" to search terms that I've been stuck on for years and finally get a hit, like https://community.autism.org.uk/f/adults-on-the-autistic-spectrum/16550/i-can-feel-electricity-in-insulated-cables---or-even-someone-s-skin-if-they-are-holding-something-plugged-in

Clearly pretty rare and I don't think I'm *quite* as sensitive as this person, but it's definitely something I experience.