Now that people are realizing that Long COVID is real, I see a disturbing trend that seeks to minimize just how common it is and restrict the definition of long COVID to the most severe cases. Nobody has to be "bedridden" or "housebound" to be experiencing the effects of long COVID or be disabled by it. I literally am not as able as I used to be, that's me being disabled by long COVID.
If y'all really want to know how it affects me, like the asshole who got me sick by coughing at me unmasked in class did, that's kinda not your business. If it was your business I would tell you that I used to walk 8-12 miles a day for work, while lifting, bending, and stooping. It was an 8 hour workout daily. When I got COVID I rested for as long as I could, stayed out for two weeks, then came back half as fast. My productivity was measured in units per labor hour. It was halved by COVID.
@galletasalada Sorry to hear about this.
I have had problems getting tests too.
Keep changing doctors or pushing them for help.
It is demoralising. I have got to the point where I don't expect anything much of them as a way of coping, but keep trying.
All best wishes for you both.
@LewisHarrington thanks. Any advice for people on Medicaid who don't have a choice of doctor?
@galletasalada
Sorry, I know America is hard where medical help is concerned.

I did not realise this was the case in the US.
@LewisHarrington in urban areas that have a lot of providers that take Medicaid reimbursement it's not the case, but for some of us our options are very limited indeed.

@galletasalada
To be honest the doctors are very little help in our system.
I've been ill for 2yrs+ since infection.

They are under pressure and not able. or willing in some cases, to help.

There is a lot of research being done though. Hopefully these problems will be more understood as they get more information.

Personally I have had a lot of problems and been treated quite badly. The doctors have done no research and dismiss anything they possibly can as 'psychological'.