Church of Jeff
Dark Matter Zine@jeffowski I have albinism. I have been told repeatedly over the years that I’m demonic etc. Apparently “proof” includes things like photos of me taken by my peers in primary school show me to have red eyes “more than the usual red eye”. Later I learnt that light passes through my irises so yeah, my red eye is bigger than for nondisabled people. I couldn’t help wonder, even as a kid, if the parents were responsible for some of that crap.
Coyoty@DarkMatterZine @jeffowski Like left-handedness, you're not disabled by albinism. You're disabled by those against it.
@coyoty @jeffowski mmm. I partly agree with you. I used to be 100% in accord because even my vision isn't as much of a problem as bigots. But now... my albinism is a symptom of HPS, which causes other problems too like bleeding (it's kinda a cousin to hemophilia). I took meds for bleeding for 3 wks, stopped, now have massive bruise on toe altho I didn't stub it!
@coyoty @jeffowski I seem to be becoming very very fragile. Small bumps are becoming big bruises and blood blisters. This isn't about bigotry, it's about existing in the world. And an average life expectancy of 45-55 that I'm close to exceeding.
@coyoty @jeffowski And I just looked back up that thread. In the context of our discussion, you're 100% correct. But in a broader context you're "only" mostly correct.