Holly A. GultianoOne day I'd like to conduct a survey asking people who work in or study neuroscience how learning about the nervous system/s has affected their own sense of self, and what kind of impact it has made on their mental health
Shannon DeMaria@axoaxonic I was in grad school studying neurobiology for a PhD when I was diagnosed with MS, which threw a whole other layer of complication on things. It actually made me less likely to talk to people around me about it because every academic talk on the subject begins with the human costs the research was trying to mitigate, so we were all exposed to vivid descriptions of the awfulness of the worst outcomes, continually.
@shademar That's real, and makes me think of the phrase used by a lot of disabled people and advocates: "nothing about us without us." Sometimes I personally feel alienated by what seems to be mostly neurotypical people centering an "ideal brain" picture when I listen to a talk or read a paper on ASD, I can only imagine what it's like for you.
If you ever felt like writing more on your experience I'd definitely read it. I really believe people who have whatever condition is under discussion should be given the mic (if they want). There's a big difference between experiencing something and studying it from the outside, and the former doesn't get heard enough for a variety of reasons that would need their own thread.
If you ever felt like writing more on your experience I'd definitely read it. I really believe people who have whatever condition is under discussion should be given the mic (if they want). There's a big difference between experiencing something and studying it from the outside, and the former doesn't get heard enough for a variety of reasons that would need their own thread.