Poul Birch Eriksen 🎙️🖋️
A tip for the inquisitive journalist
The take away from #FDA's approval of #Hemgenix - a #genetherapy for #hæmophiliaB - has been that Hemgenix is now the most expensive drug in the world, because manufacturer #CSLBehring priced the treatment at 3.5 million $ after it was approved
via #theguardian
https://bit.ly/3tVt0NJ
But what about focusing on how that price tag was calculated?
Andf if #CSLBehring are following a trend seen with other new drugs for chronic conditions 1/
Gene therapy at $3.5m a dose approved for US adults with hemophilia B

Hemgenix frees patients from repeated treatments but initial cost makes it most expensive medicine in the world

The Guardian
Nov 28, 2022 at 3:23pmWeb
Show threadPoul Birch Eriksen 🎙️🖋️Nov 28, 2022
It appears that the asking price for these new drugs does not so much reflect the actual costs of development and manufacturing plus a profit, but rather what pharmaceutical companies expect governments and insurers to be willing to pay
An eyeopener was the price hike of generic drugs by Martin Shkrekli in 2015, but high prices has also been seen with medicines for #hepatitisC and #diabetes 2/
Show threadPoul Birch Eriksen 🎙️🖋️Nov 28, 2022
Legislators both in the EU and in US states like California and Massachusetts have worked to promote transparency and cost control of pharmaceutical drug prices