MrMed : Online PharmacyApr 17, 2025

India's Risdiplam launch dramatically cuts Spinal Muscular Atrophy (SMA) medicine cost to ₹15K. Learn how this affordable treatment offers new hope for patients.
https://www.mrmed.in/health-library/neurology/risdiplam-india-launch

#Risdiplam #SMA #IndiaHealth #AffordableMedicine #RareDisease #SpinalMuscularAtrophy #HealthNews #NatcoPharma #IndianPharma

What's The Best Place To Buy Cancer Medicines? | MrMed

MrMed - India's Largest Online Super Speciality Pharmacy offers discounts upto 85%. Order Cancer Medicines online and get doorstep delivery. Pan India delivery.

Ꮆㄖ卩卂ㄥNov 10, 2024
#risdiplam a medicine to treat spinal muscular atrophy (#SMA) cost 72Lakh Indian #Rupee per patient per year (ie. USD85K). Less than 0.1% of Indian households have an annual income of this number. Dr. Melissa Barber of Yale University, reveals the manufacturing cost of this medicine to be less than 3000 INR (ie. USD 35).

This is how private drug research and companies make profit and clearly shows why drug research and production should be in public sphere.
#DrugResearch #DrugPolicy #PublicHealth
timesofindia.indiatimes.com/home/sunday-times/all-that-matters/how-many-patients-must-die-to-pay-the-debt-to-drug-innovation-dr-melissa-barber/articleshow/115122367.cms
How many patients must die to pay the debt to drug innovation: Dr Melissa Barber - Times of India

Sunday Times News: A drug pricing expert reveals the shocking cost disparity of a life-saving spinal muscular atrophy drug in India, priced at Rs 72 lakh per year despit

The Times of India
James Packard LoveApr 18, 2023

Submission by Melissa Barber supporting the application to include #risdiplam, a treatment for #sma, on the @who essential medicines list. Melissa reviews the historical evolution of the criteria for inclusion and comments on manufacturing costs.

https://cdn.who.int/media/docs/default-source/essential-medicines/2023-eml-expert-committee/public-comments/a40_risdiplam_barber.pdf?sfvrsn=28a26d21_1

James Packard LoveApr 18, 2023

This is a "Statement in support of the proposal on the inclusion of #risdiplam in the @who Model List of Essential Medicines for the treatment of spinal muscular atrophy" by 21 #SMA patient organizations.

https://cdn.who.int/media/docs/default-source/essential-medicines/2023-eml-expert-committee/public-comments/a40_risdiplam_sma-assocs.pdf

James Packard LoveJan 10, 2023

Roche has informed me that the patent landscape for #risdiplam is included in the pat-infomred public database.

https://www.wipo.int/patinformed/

Pat-INFORMED

Show threadJames Packard LoveJan 5, 2023
To appreciate why this is important, note that the retail US price for #risdiplam is more than $1,100 per day for the 5mg dose, and the API for the drug can be manufactured at scale for about 10 cents a day. #sma
Show threadJames Packard LoveJan 5, 2023
KEI is in discussions with generic drug manufacturers to supply affordable versions of #risdiplam for the treatment of #sma. Having more transparent global patent landscape data is important.
VronicornNov 6, 2022
Habt ihr kluge Menschen denn Tipps und Tricks zum Training von Fingerkraft und/oder Handgelenksstabilität? Also für wirklich, wirklich wenig Kraft? Inzwischen macht mich #Risdiplam so zuversichtlich, dass ich wahnsinnig gern versuchen würde aktiv mehr Muskulatur aufzubauen.
Sir thalon Jun 21, 2021
Ich überlege an einer Gründung einer kleinen Gruppe zum Austausch zwischen Nutzern von #Risdiplam, zum Beispiel über die Erfahrungen und Best-Practice bei der Lagerung und Transport etc. Wer hätte Interesse? #sma