The thing they don't tell you about MS is that coffee becomes almost literally a life-saving drug #MSlife

Have had one of my turned-off days. Seemed fine this morning, normal exercise, did the bird feeders (it was bloody cold out, ice smashed on bird bath etc.), breakfast, then fell from the overnight 100% full to 10% charge* just like that. Amazing feeling it go, almost like it's a reservoir draining out of your toes.

Been on 10% since. Awake in 20-30 minute spurts so far (three of them all day).

Managed 45 minutes this time, so hopefully tonight's full charge will stick.

*For the hard of understanding, this is a metaphor for my personal energy and not that of my phone.

#MSLife

For others dealing with Multiple Sclerosis, because they or someone they know has been diagnosed with this crazy condition, I’ve created this custom feed for us. Pin 📌 it to your home to see what the #MS community is talking about. Use #mslife to contribute. Created with surf.social.

RE: https://bsky.app/profile/did:plc:wxf4d2i52g433rdno4seun4u/feed/mslife-obyf3p
Bluesky

Bluesky Social

My brain’s got more tabs open than a conspiracy theorist’s browser, and at least five are frozen. Started a blog post… forgot it existed. Twice. Mental misfires are the best #MSBrainFog #MSLife #WhoNeedsMemory

https://mssucks.co/e

The Worst Superpowers MS Has Given Me

Brain fog, forgotten tasks, and a memory like a potato—welcome to MS. When your mind runs 37 frozen tabs, even remembering a blog post is a challenge.

MS Sucks

Empower Yourself: Practical Strategies for Managing Multiple Sclerosis
Discover practical strategies to empower yourself and manage Multiple Sclerosis (MS) effectively. Learn about lifestyle changes, medication options, and coping mechanisms to improve your quality of life.
https://www.evernote.com/shard/s676/sh/933cac7e-33b7-2cf5-569a-2694254689e5/cpDpyb6pmmNG4OgpgKcsB0xTr8uFbmaEg-Dpvqbjk1y6x57jMCceUFHqug

#MultipleSclerosis #MS #MSWarrior #MSLife #MSManagement #MSHope #MSCommunity

Empower Yourself: Practical Strategies for Managing Multiple Sclerosis

Living with multiple sclerosis (MS) can feel like navigating a stormy sea without a compass. This unpredictable autoimmune diseases disrupts the central nervous system, creating numerous challenges. H...

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It is only a real vacation if and only if you come back and inTune complains and forces you to upgrade your system before you can do anything #mslife
Thankfully, those pesky Sciatic nerve thingies down my left-back leg/hip seemed to have eased off now... phew. Thankfully. As I said, it has been more annoying than painful, but I have sure been more careful with walking re. foot drop ext. "Such is Life". #MSLife #MS
@LightningDuck [laffs] I know this all too well! lol #MSLife