"No studies have proven that…"
Funny how doctors love to trot that out right before they say something that completely invalidates patients' experiences.
I also don't mean patients' experiences with whatever follows the "that," I mean patients' experiences with _how poorly they are treated into today's medical system_.
The mixture of the paternalistic model of healthcare, absolutely awful biases, and a bizarre set of conceits, the costs, and the executive function load required to navigate it all? And how many of us have been given somewhere between "bad" to "outright gaslighting" guidance from medical professionals?
So first of all: A great deal of medicine is uncharted territory, and you don't realize how much of it that is true for until you get into the weeds of a condition.
Second: If you don't want people looking elsewhere then medical care needs to be accessible and easy to use, and you need to actually listen to your patients.
I don't blame someone in pain trying to find a supplement to that reduces it when every doctor they approach thinks that they either "just have anxiety" and/or are drug seeking opioids;
I don't blame someone with MCAS from listening to advice on forums when the immunologists they talk to will flat tell them that MCAS doesn't exist and if it does exist they don't have it per an arbitrary (and disputed, even among clinicians) blood test;
I don't blame a trans woman from taking guidance from her DIY discord when her experience is that half the doctors she see try to convince her that HRT is a bad thing and the other half keep her levels maxed at what should be her trough.
I'd love if everyone could get the pain support they need.
I'd love if everyone got doctors who believed their symptoms and would be willing to work with them.
I'd love if every trans person had easy access to medical transition if they wanted it.
I'd love if all of these were easy to do and inexpensive to manage.
There are (generally) four pillars of bioethics. Two of them are Justice and Autonomy. What the frak are you doing when those are the lowest priority for you to the point of implementing this paternalistic model and then using that model as an excuse to deny them _actual medical care_?
#rant
#medicine