Melody was looking particular pretty.
#dog #dogs #doggo #dogsofmastodon #DogsOfFediOh no.
My daughter has discovered Justin Bieber. She has a playlist of Justin Bieber videos on her phone and she's dancing to them. She also insists that he's coming to her condo to meet her parents and her roommate.
#downSyndrome #parenting #TheBiebTonight's dinner: pierogi, kielbasa and broccoli with lemon vinaigrette
#cooking #food #foodpornIn the words of a friend of mine with a "typical" son of the same age, "she's more independent than [him]". I wish that her existence and independence wasn't so politically tenuous, but here we are.
And we've helped her accomplish that. She lives in a condo with a roommate and who, with PCAs, help her with activities for daily living. For Alice, this means helping her make dinner, pack up lunches, go to the gym, and clean her space.
This is extremely depressing and we are trying to both prepare for the worst case and find the sweet spot where Alice can live as independently as possible. She is happiest when her world isn't in flux and she has agency.
Alice grew up in a time when more work was done to have people with Down syndrome integrated into the community, but also during her life we're seeing the funding and supports dwindle.