ME is Real

@meisreal@disabled.social
213 Followers
94 Following
128 Posts

Chronic invisible illnesses are real and physical. Believe people when they tell you. #pwME (people with M.E.)

I got Epstein-Barr Virus (Mono) in 2006 and haven’t been the same since. It started as light-headedness & fatigue, and over the years I have gathered a range of symptoms that match tightly with #MyalgicEncephalomyelitis (although my diagnosis in 2010 was CFIDS). I work from home full-time in Tech, and don’t leave the house much to conserve energy.

Old Twitter@meisphysical
LocationU.S.
Show threadME is RealDec 17, 2022
Unscented Shampoo & Conditioner. Cutting out unnecessary chemicals is a big life improvement for #pwME and people with #chronicIllness. Shampoo was one of the last things I finally I replaced. I tried a bunch and I like Earthling Co. #MCAS #Accessibility https://theearthlingco.com/products/shampoo-and-conditioner-bar?variant=41585931190451
Shampoo & Conditioner Set

ME is RealDec 14, 2022
Show threadRobert Thinks You’re GreatDec 13, 2022

@Twig It could be a symptom of a central auditory processing disorder, which is not uncommon amongst #ActuallyAutistic people. For me, I may hear all of the phonemes accurately. However, my brain fails to organize them into words and sentences. They’re just sounds.

It’s worst on the phone or over a web meeting, but it can happen to me in person times. It’s also why I like captions or subtitles in games, tv shows, and movies.

Show threadME is RealDec 11, 2022
I wonder how different things may have been if I had been made aware of ADP back then. It may have helped my understanding and accommodations for it. And maybe would have led me to look at Autism more closely. 20 years later and I am only now looking into it, all because of some Instagram reels popping up on my feed.
ME is RealDec 11, 2022
I’m looking at the possibility I may be #ActuallyAutistic. Thinking back on my history before I got #MyalgicEncephalomyelitis.. I remembered that 2nd year of university I went to a psychiatrist about having trouble processing verbal information in class. Instead of the obvious Auditory Processing Disorder, he diagnosed be with Dysthymia (type of depression). Based off of a one-sheet questionnaire. So frustrating.
ME is RealDec 10, 2022
Loops 🍑  Dec 8, 2022

I'm *officially* #ActuallyAutistic.

I mean, I knew. I just didn't know how to accept it. I felt like a fraud. I had plenty of impostor syndrome. Still do, that'll take a while to shake.

But someone saw me. And agreed. And suddenly all those voices got a lot quieter.

Things I'm feeling: joy, upset, seen, acknowledged, doubt, flappy... conflicted 😅 A heady cocktail, at any rate.

I uh. Just wanted to share 😆

ME is RealDec 5, 2022
Cheshire CatDec 5, 2022

Autistic Proof #3:

1) All Autists are raised to believe they are Allists except those diagnosed in childhood.

2) Therefore society gaslights all undiagnosed Autists into believing their Autistic view of the world is the Neurotypical view.

3) Therefore the question to “Am I Autistic?” Is actually much simpler and straightforward than an undiagnosed Autist is prepared to accept due to society gaslighting them for years that they are Allistic.

4) If you have any feeling that you are Autistic it is in fact a massive amount of certainty relative to the amount of gaslighting that society has built up regarding Autism.

5) Only a person demonstrating multiple Autistic traits could overcome the misinformation and gaslighting about Autism to the point that they could routinely speculate themselves to potentially be Autistics.

6) There is no absolute evidence that a person is or is not Autistic.

7) The Autistic Community embraces self-DX

8) If you routinely speculate that you are Autistic the Autistic Community will accept you as Autistic

9) The Autistic Community is the collective undeniable expert on Autism

10) If the undeniable expert on Autism would accept you as Autistic, and you accept the opinion of undeniable experts, it is only logical to accept that you are Autistic.

ME is RealDec 2, 2022

Best early Christmas gift: New wash machine! But not because I love laundry..

Our wash machine was not rinsing well so everything smelled like “unscented” detergent. Instead of asking me what to do about it, my husband bought a new one with all the same features and installed it.

Usually we figure out these things together. So it was such a great gift to not have to think about it, troubleshoot, decide, shop, coordinate the delivery.. Things that cost spoons.
#pwME #chronicIllness

ME is RealNov 29, 2022
Oh joy, the valacyclovir I have been on for 10+ years is now “too many” so I have to do prior authorization or pay $90 a month. Who is my doctor again?
ME is RealNov 27, 2022
Colin-Roy HunterNov 26, 2022

“#MS and ME/CFS patients share a number of similar symptoms and there is increasing evidence that many long #COVID patients also share similar symptoms. It is also believed that some patients may be developing #MECFS symptoms as a direct result of having a sCOVID19 infection.”

#MyalgicEncephalomyelitis #pwME

https://www.biosciencetoday.co.uk/first-genetic-links-revealed-in-me-and-chronic-fatigue-syndrome-study/

First genetic links revealed in ME and Chronic Fatigue Syndrome study - Bioscience Today

Techbio company PrecisionLife has unveiled the first detailed genetic insights into the pathophysiological mechanisms underpinning Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This is the first time that replicable genetic findings have been reported in over 30 years of study into the disease, offering new approaches for better diagnosis and treatment of patients. PrecisionLife, based in Oxford, […]

Bioscience Today
ME is RealNov 25, 2022
halNov 24, 2022
Blessings and love to everybody who is in pain, physical, emotional and spiritual. I see some people introducing themselves in this new platform, so here goes: I'm Hal, and I have been living with disability for many years. Depression, Fibromyalgia, ME/CFS, C-PTSD, ASD, post-viral problems, brain fog, sensory/sensitivity issues. 24 years clean/sober. Moderately high-functioning, although I had to quit working again last year. Trying to stay positive and grateful and take life as it comes.