❀ the chthonic companion ❀

@lunarflight
45 Followers
73 Following
198 Posts

• a Malayali matriarchal accomplice
• severely & multiply disabled
• trans, queer, mad, AuDHD, crip witch
• full-spectrum birth, death & crip companion

♡ correct pronouns are they/them/theirs ♡

♥︎ ON CRIP TIME & IN ROLLING PEM ♥︎

https://linktr.ee/the.chthonic.companion

Liberapayhttps://liberapay.com/the.chthonic.companion/
Venmostrelitzia-at-daybreak
CashAppstrelitziaatdaybreak
PayPalmagicandsword
❀ the chthonic companion ❀Mar 5

the hospital bed is expected to arrive tonight!

can you please help me to afford to make the hospital bed and surrounding space accessible and to afford a second sheet set?

thanks!

VENMO: strelitzia-at-daybreak
CASHAPP: strelitziaatdaybreak
PAYPAL: magicandsword
LIBERAPAY: the.chthonic.companion

Show thread❀ the chthonic companion ❀Mar 5

i also expressed to my primary care provider that i need a hospital bed for the main floor and it's been ordered.

now we wait for insurance approval.

❀ the chthonic companion ❀Mar 5

i saw pulmonary yesterday and we made a plan on how to move forward to figure out why my breathing is restricted.

i will see sleep medicine and complete a sleep study.

i will see neurology to evaluate for neuromuscular disorders.

and i'll be completing another pulmonary function test but this time in different positions.

depending on the results, i may also need to see ENT.

Show thread❀ the chthonic companion ❀Mar 5

however, it's been evident to me that individuals, systems, institutions, and the state do not give a damn about my life and would rather i die than offer the necessary care and support for my living.

i'd much rather spend my time dedicating it to my joy, living by my values, and prioritizing my beloved relationships and communities.

❀ the chthonic companion ❀Mar 5

UPDATE ON IV INFUSIONS

i want to share that i no longer will be crowdfunding for weekly IV infusions.

while it was helpful, i have no interest in convincing people my worth and value as a human being who deserves to have access to medical treatments and interventions.

yes, i have a right to live - i'm actually a loving, kind, compassionate, fierce person and i want to live and grow old with my beloveds.

❀ the chthonic companion ❀Feb 20
"Hi! Your lung function testing came back mildly abnormal that was not responsive to inhaler treatment. Asthma is less likely, but many things such as chest wall restriction, neuromuscular weakness can be seen in this. I would like you to see Pulmonary."
❀ the chthonic companion ❀Feb 16

struggling to breath

high blood pressure

fast heart rate

woozy

Show thread❀ the chthonic companion ❀Feb 16
i am scared and overwhelmed. and i especially am concerned about my kiddos and spouse as they navigate possibilities of my health further declining and my possible dying sooner than later.
❀ the chthonic companion ❀Feb 16

i was in the ER for about 8 hours - from about 5:30pm to 1:30am - and i was accompanied by my spouse.

i'm grateful that the attending actually did his job and questioned how the x-ray written results ignored the abnormalities as a non-issue.

the cat scan he ordered indicated that i have mosaic attenuation in my lungs, especially in the lower lobes - likely caused by long COVID.

i have a follow-up with my PCP tomorrow and hopefully can get pulmonary testing as soon as possible.

❀ the chthonic companion ❀Feb 16

possible small airway disease - given an albuteral inhaler - need to schedule pulmonary testing.

fuck long COVID.