Mastodawn

Dear Fedi friends.

As some of you may know, I have a wonderful daughter Lila who had a severe form of epilepsy at the age of 5 months. This epilepsy is called West Syndrome.

We had to go through a hell of a treatment to stop her seizures. The thing that helped her was called "Synacthene Retard". It's basically ACTH, a synthetic hormone similar to adrenocorticotropic hormone produced by our anterior pituitary gland.

My daughter was one of the last kids who had a chance to get the Synacthene Retard from the lab that produced it (Alpha Sigma). This was late March 2024. And in May 2024 Alpha Sigma said they discontinued this product without ANY public explanation.

I am trying to inquire about the disappearance of Synacthene Retard from French pharmacies. I am looking for contacts of a medical journalist or an expert in pharmaceutics to help me lead this investigation. It may save lives of dozens of other kids with that suffer from West Syndrome. Thank you!

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ex_06 1d ago

siete stat* truffat* dalla big puntarella, perché già esiste 😎

https://lemminielettrici.it/

@tana

L'attrito nelle community è una cosa buona perché è un filtro di qualità, ma nella sua vecchia forma c'era proprio troppo attrito e quindi c'è stata una grossa semplificazione: niente più categorizzazione divisa per community!

Per seguire da altri server basta seguire la @tana e per postare basterà taggarla (come prima cosa nel vostro toot)!

ovviamente siete benvenuti/e nel fare l'account direttamente sull'istanza

Lemmini Elettrici - Una bacheca solarpunk italiana

Lemmy

ex_06 2d ago

vi piacerebbe una specie di hackernews ma solarpunk e quindi anticapitalista + che vada oltre la tecnologia nella sua definizione più stretta? e con discussioni solo in italiano e pensato per l'Italia

sì

60%

no

10%

non so se lo voglio

10%

non lo so perché non so bene cosa sia hackernews

20%

Poll ended at Nov 29 at 7:45pm.

ex_06 6d ago

Doug Webb 6d ago

The best resource I have come across about text legibility! 😍

https://legibility.info

Offered by The German Federation of the Blind and Partially Sighted (DBSV), available in German and English, based on DIN 1450 and WCAG standards.

ex_06 6d ago

Bart Groothuis 6d ago

My initiative to restrict Chinese PV inverters in European critical energy infrastructure has been picked up by the @WSJ some quotes:

https://www.wsj.com/business/can-chinese-made-buses-be-hacked-norway-drove-one-down-a-mine-to-find-out-fbda755f

ex_06 Oct 26

What activitypub needs:
- encryption
- being able to change instance without changing identifier
- a telegram-like client

What matrix needs:
- being able to change instance without changing identifier
- a discord like client and server

Both telegram and discord already works without a home feed or general feeds that connect the whole platform, they require users to know the link most of the time. This basically means that users are already prone to not being able to just search for stuff, unlike the ones coming from Twitter, reddit, Instagram etc.

(IMHO)

ex_06 Sep 17

btw if i follow you and then unfollow and then after some time follow again it's not because of some cringe tactics, is just that it's a pain to manage lists and so i'm still finding the balance, like i do with my rss reader u.u

ex_06 Mar 7

ex_06 Feb 5

solarpunk trinity

(post made again 'cause the previous one was almost 10MB)

ex_06 Mar 23, 2024

Maledetta Primavera

Giocano i bambini
Cantano gli uccellini
ma tu non canti più

Si accorciano le gonne
Ballano le donne
ma tu non balli più

Eravamo dei giocherelloni…
Ci manchi, Silvio Berlusconi