@Sahara88uk

16 Followers
21 Following
11 Posts

Do you know what you’re entitled to and in what circumstances when it comes to your #healthcare? 🔗 https://advocatinghealth.com/2023/07/20/know-your-rights-gp-practices/

You have a legal right (in the (UK) to choose which #GP practice you register with, to ask to see a particular doctor or nurse at that practice, and to access primary care services digitally.

I don’t know about your experiences, but the information in this article that should be adhered to is already failing in my area. More on that at the bottom of the article.

Know your rights | GP practices

Do you know what you’re entitled to and in what circumstances when it comes to your healthcare? There are a bunch of “easy read” leaflets on the GOV website, which tell you all ab…

Advocating Health

I believe this to be true. How about you?

My journey with #IBD and an #ostomy has been a turbulent one. I often think I had no choice but to be strong, and keep moving forward. No matter how many times treatment didn't work, and how many times I needed surgery, I held onto hope.

I didn't HAVE to. I could have given up. My therapist pointed out how many other things I could have done, and didn't. So, next time someone tells me: "You're so strong", I'm going to try my... https://www.facebook.com/100055161354379/posts/796868062161898/

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Come and join the Monday Night IBD conversation - IBD and body image/self-confidence: https://twitter.com/Sahara88uk/status/1679136611022389249?t=tUtH_DQL8_pChIlfWp0H1Q&s=19
🐝Sahara Fleetwood-Beresford🌱Advocating Health🩺 on Twitter

“@MondayNightIBD @AaronBlocker_ @DCharabaty @Empoweringpts9 @colitist @BarrySchoedel @EckMichele @Iris_CU93 @NoemiStefanucci @ibd_i20 @KaazanPatricia @MartaCalvo12 #MondayNightIBD #PatientExperience 📢Patients with #IBD & caregivers: 📊#IBDPoll 1⃣ 🪞Did/do your #IBD symptoms (weight⬆️/⬇️,skin manifests, perianal disease, etc), and/or IBD treatments (med side effects, weight⬆️/⬇️, IV/port, #ostomy, urgical scars) affect your #BodyImage?”

Twitter

Social media, am I right?!🤯

I genuinely don't have the energy to keep up with my favourite (Twitter), never mind Facebook & Insta.

I need to be on LinkedIn for work (I've avoided an active TikTok up to now). Now there's Mastodon, and Threads; what's next?!!

Exciting day, launching a super exclusive, invite-only community for merakoi's #PatientAdvocates! A space to support one another's professional advocacy journey.

I wish I could invite you all to be honest, as I think it's going to be a great and supportive network.

If it's something you think you might benefit from, go join merakoi's global network of patients, and finally have the opportunity to get paid for the insights you've gained during your health journey! https://merakoi.com/

Home - merakoi

Healthcare companies want to work together with patients. Yet often struggle to collaborate efficiently with them and miss the opportunity to integrate their...

merakoi

I've had so much great feedback on this blog, from newbies to #InflammatoryBowelDisease (IBD) veterans! https://advocatinghealth.com/2018/06/02/what-people-with-ibd-should-know-2

I’m often asked, “What would you tell someone recently diagnosed with #IBD?” So, this is what I think you should know! Look out for clickable links in this blog, leading to more detailed information!

What people with IBD should know

I’m often asked, “What would you tell someone recently diagnosed with Inflammatory Bowel Disease (IBD)?” So, this is what I think you should know! Look out for clickable links in this blog, le…

Advocating Health

My posting has been very sporadic of late. Between work and being exhausted, there's not been much time for social media 😴

We went to Chester Zoo on June 24th, and I appear to be recovering from that still 🙈

I've found myself avoiding doing things, in attempt to build energy. It doesn't seem to have worked, so I'll be going to wander some gardens on Weds, having lunch with a friend for her Birthday on Fri, AND another garden discovery adventure next Sunday.

#PatientAdvocate #IBDSuperHeroes

@amazingFaerin my top TOP tip is a food diary!