I've been on t for 10 weeks!
I encourage people to learn about this condition and how it affects people. It's good to teach yourselves about things like this. If you can afford to making donations to charities like Nerve Tumours UK help a lot.
I was born with the condition, inheriting it from my mother. I have some mild learning difficulties and suspected adhd and autism. I have multiple plexifribroma, including one that disfigured my chest. I've had multiple MRIs and get regular checks yearly. Still, my case is fairly mild. Many people struggle more.
I forgot to make a post for Rare Rare Disease Day on the 28th. While NF1 is actually fairly common, not many people have heard of it. The genetic condition causes tumours to grow on nerves. Other conditions tend to come with it, like learning difficulties and chronic pain.
Updated my dream address for mini Brighton since we had the update. Its only loosely based on the city but I like it.
#animalcrossing #acnh #dreamaddress DA-1583-6753-5371
So big news last week I started hrt. I'm finally on boy goop. I'm starting at a lower dose than usual, just one pump a day for the first few weeks. Then I'll up to two pumps. This is mostly vuz I wanted to be careful about how I adjusted given I'm on anti depressants. I'm tracking my voice and taking selfie once a week to see my progress! I'm excited.
#hrt #testosterone #queer #transmasc #nonbinaryHaving a lot of gender thought the past couple of days. Their keeping me up. What I want seems so far beyond my reach. I don't know if I'll ever be happy.
#nonbinary #transmasc #queerMy mother was disabled due to a tumour growing on her spine. I spent my childhood and early 20s caring for her and neglecting my own health. My condition currently isn't too serious but I have a lot of anxiety and often feel depressed about my health. Sometimes, I feel like a ticking time bomb.
For me, my condition resulted in mutiple plexifribroma and cause a large section of my chest/breast to be disfigured. I also have some mild learning struggles and mental health issues. I'm being monitored by a specialist in London. The ward there is wonderful, and they have helped me understand what's going on with my body.
May is Neurofibromatosis awarness month. It's a good opportunity to eductate yourself on the condition and support charities that offer support and research. These include Nerve Tumours UK, The Neurofibromatosis Network and The Childhood Tumour Trust.
