Yesterday I attended an online Patients’ Circle about healthcare and medical issues in the United States, a side project of the ā€œBe a Heroā€ group, called The Patients Union. Basically a grassroots, mutual aid-ish, advocacy group attempting to give people power to change healthcare and how they are treated in the system. So far it is just starting to organize, with some areas already working to help with denials and appeals. It will be more than this though because there is so much more needed!

Has anybody else heard of this? It’s just started, not much is on the fediverse, and their website is not great… or, they are still in he just getting started mode, not ready to launch, brainstorming mode.

Any suggested hashtags, discussion, or links welcome!

#BeAHeroFund #BeAHero #ThePatientsUnion #PatientsUnion
#medical #Heathcare #PatientsRights #PatientsCircle

ā€œAmericans are feeling the squeeze from rising healthcare costs—and people are already going without.

A new survey found that about 1 in 3 adults in this country are making sacrifices just to afford healthcare. Skipping meals. Driving less. Borrowing money to get through it.¹

For a lot of us, that doesn’t come as a surprise. It sounds like something we’ve lived.

It looks like trying to decide which bill gets paid and which one waits. It feels like putting off care you know you need and hoping things don’t get worse. It’s that quiet calculation so many of us carry: Can I afford this? What happens if I can’t?

This is how the system shows up in people’s lives—not as a headline, but as a series of trade-offs that slowly shape everything else. And most of the time, those decisions happen alone.

These moments stay private. They don’t get talked about. They don’t get measured in a way that reflects what they actually cost people.

So we want to ask you something directly:

What have you had to put off, cut back on, or go without because of healthcare costs?

TELL US WHAT YOU'VE HAD TO GO WITHOUT

Because when we start to see how many of us are being pushed into these choices, it stops being invisible.

This starts to become something we can face—and change—together. We’re building The Patients Union so patients can find each other, stand together, and push back on a system that’s asking too much from all of us.

Thanks for standing with us.

The Patients Unionā€

https://actionnetwork.org/forms/healthcarecosts/

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@Pomegranatepirate So sad to read this.. That's the reality we all live here in the countries conquered by the United States. I'm from Chile, and it's been told that this is by far the world's most neoliberal country: in other words, the future of neoliberalism can be seen through Chile. And we live that way since the bloody dictatorship intalled in the 80s the model in our constitution, writen by the "Chicago Boys". Every day there is less and less hope.. we could change things a few years ago but fascist propaganda won. Now we are inmerse in some kind of numbness, incapable of doing much. Southamerica cries again and again. This time, with the pain of our inderect conquerers, the victims of USA, as always, the people.