Malka Beth

So the specialist have rescheduled his next visit yet again, without my spouse's consent or at least tried to, this time he at least got an email we both understood to be yet another incident of this pattern of ADA & overall attempts to invalidate the basic rights of people who aren't in inpatient care, to control their own schedules in visiting Dr's. He emailed back to refuse the newest date as at this point it's a refusal of theirs to provide the service of said physician..

After last night's rains, that kept us up most of the night, neither of us really have the strength to handle a local clinic visit, so as shitty as their system is, we used their general online contact form, to message our cancelation & request of reschedule via email.

*Patient portals at neither set of Dr's offer scheduling via using said portals, so our request for emails & not portal use isn't at all hampering scheduling. The fact that they still somehow don't seem to have it register as anything but an attitude problem of ours, that we can't use voice calls to schedule & reschedule visits, rather than their not granting said reasonable accommodation of email use, is a major & continual problem.

The specialist clinic being really intollerably bad because whenever they screwup, by changing the schedule yet again & not informing us of this until we've arrived to try & checkin, they've cost us about 1.5 hours of time & 1.25 gallons of gas just to drive there, park & get from an on campus parking garage spot to their actual office, with travel on my spouse for that distance & time not being very easy lately. Yes....sometimes we've the energy to stopoff around 1/2 way back for a store trip beyond often needing to eat out to avoid seizure issues on the exhaustion, but that doesn't make the setup anymore sensible to continue. The very reason we're going there is because they're supposedly the closest place that'll treat his issues, which likely are largely responsible for how little energy he has to begin with, but for care to be possible the Dr actually has to show up for when we've scheduled an appointment with them & not have nurses trot out what amounts to my mind to a long excuse set over the reality of
"we will not treat you unless you're a pair of people who'll gladly hop to answer any & all our phone calls, continually change your schedule in whatever ways we find convenient and accept our word as we pass along second hand, the easier for us to manage & track treatment methods from the Dr, to avoid you bothering them with more visits."

#ADA #DisabilityAccessibility #MedicalCare #Communication #Anemia

Mar 5 at 7:00pmWeb
Show threadMalka BethMar 5

This btw is after the first specialist set, that was 1/2 the distance said they wouldn't treat his condition, with them also refusing to use emails to communicate, which took about 6 months to learn of, so overall we're at about 18 months, 5 appointments made for Dr's, 3sets of labs drawn for this Dr, 2 via scheduled appointments & 1 actual visit with a specialist Dr whom claimed they'd do all they could to avoid our needing to visit them or said city much, because they understood it wasn't easy on us.

*The offer of that convenience for them treatment from the nurse, being in that same further away city. So either the Dr was lying on everything or as is far more likely they don't have control of much of anything & as such aside from their disease descriptions & processes- if we get to them for it- they can't be trusted to give us any truthful information.