Mastodawn

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"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"

https://substack.com/home/post/p-178293036

In a thoughtful blog post, the author tries to explain #PostExertionalMalaise and how people who suffer from it need to be very careful with which activities they take on.

He highlights how this symptom can lead a worsening of the condition which could be permanent.

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid
#LongCovid #PEM

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Tom Kindlon Jan 26

2/‬

‪He highlights how post-exertional malaise can lead a worsening of the condition which could be permanent.‬

‪#LongCovid‬ #MEcfs #PostExertionalMalaise #PEM #CFS #PEM #PESE

@mecfs @longcovid

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Tom Kindlon

“This is what people on the outside don’t understand. When they say “but you’re only working part-time,” they think that means you have all this free time. They don’t understand that the “free time” is actually recovery time. It’s not leisure. It’s not available for social activities or hobbies or the things that make life worth living. It’s medical necessity disguised as empty calendar space.”

@mecfs @longcovid #mecfs #longcovid #spoonie #spoonies

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Tom Kindlon Jan 26

“When the people in your life don’t understand PEM [post-exertional malaise], they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence. They’re missing why you can’t just meet them for a meal, why you can’t work full-time, why you can’t be the person you used to be”
@mecfs @longcovid #longcovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME