Today is #SickleCell Awareness Day 🩸 40% more people are living with sickle cell disease today than in 2000. It is a growing health challenge, affecting around 7.7 million people in the world today. Read WHO’s new recommendations on care during pregnancy: bit.ly/446z3AV
#SickleCell disease is a group of inherited blood disorders characterized by abnormally shaped red blood cells. These cells can block blood flow, causing - severe anaemia - episodes of severe pain - recurrent infections - emergencies like strokes, sepsis or organ failures bsky.app/profile/who....

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#SickleCell disease poses life-threatening risks for women & babies. In fact, it leads to a 11X higher risk of maternal death, increased rates of stillbirth, and preterm births. WHO’s new guideline aims to improve pregnancy outcomes for those affected. 🔗 bit.ly/446z3AV
With high quality care, women with #SickleCell disease can have healthy pregnancies and births. They need: 👨🏿‍⚕️ Access to skilled health workers 🩺 Additional health checks 🤰🏾 Individualized & respectful care 🔬 Research for safe treatments in pregnancy bit.ly/446z3AV
Many pregnant & breastfeeding women cannot be sure that their needed medications are safe for them – inc. for diseases like #SickleCell - because of exclusion of these groups from clinical trials. 🔗 bit.ly/4e7Pql8

Equity and health: the inclusi...
Equity and health: the inclusion of pregnant and breastfeeding women in clinical trials

Pregnant and breastfeeding women have historically been excluded from medical research, resulting in substantial gaps in evidence on the safety and efficacy of medicines and vaccines during these critical periods. This exclusion has led to fragmented health policies and inconsistent clinical recommendations for prevention and treatment. The UN’s Special Programme in Human Reproduction (HRP) and the World Health Organization (WHO) are working to reduce these preventable deaths by promoting best practices to include pregnant and breastfeeding women in research in an ethical way.

A new global Task Force aims to accelerate ethical inclusion in research, for safer pregnancies and births. Read more: bit.ly/4e7Pql8 bsky.app/profile/who....

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