Sad Bunbun
May is Neurofibromatosis awarness month. It's a good opportunity to eductate yourself on the condition and support charities that offer support and research. These include Nerve Tumours UK, The Neurofibromatosis Network and The Childhood Tumour Trust.
May 8, 2025 at 3:37pmMastodon for Android
Show threadSad BunbunMay 8, 2025
For me, my condition resulted in mutiple plexifribroma and cause a large section of my chest/breast to be disfigured. I also have some mild learning struggles and mental health issues. I'm being monitored by a specialist in London. The ward there is wonderful, and they have helped me understand what's going on with my body.
Show threadSad BunbunMay 8, 2025
My mother was disabled due to a tumour growing on her spine. I spent my childhood and early 20s caring for her and neglecting my own health. My condition currently isn't too serious but I have a lot of anxiety and often feel depressed about my health. Sometimes, I feel like a ticking time bomb.