Maggie Maybe

This makes me so sad. This is from the Covid long hauler Reddit sub, and this makes me so sad.

I’ve taken breaks from taking LDN (for #MECFS from mono) when I have had to take lots of opioid pain medication and I don’t want to deal with interactions. So far it has never set me back except for on the days I don’t take it.

The compounding pharmacies have been buying the #naltrexone powder from #China since at least the 80s. If they can’t get it, we can’t get LDN.

And I can’t take the medication this person is taking, #Wellbutrin makes me feel like I’m going to crawl out of my skin, and if I take more than 0.5 mg naltrexone I will give myself opioid withdrawals because I take pain medication from pain management.

#FML is right. This is the only medication I have ever taken that actually helps my chronic ill illness. Adderall can help me push through if I have to do something I can’t do, but I wouldn’t call that exactly helpful.

#LDN is the only treatment I have found for MECFS that helps me and I think we’re all going to run into problems pretty quickly.

#reddit #LongCovid

Apr 26, 2025 at 1:47pmWeb
Show threadMaggie MaybeApr 26, 2025

I should have left the link

https://www.reddit.com/r/covidlonghaulers/comments/1k87log/it_was_nice_while_it_lasted_but_now_im_back_in/

I read the comments and in case anyone from here reads them I just wanted to say a couple things.

I don’t think people have withdrawals from stopping #LDN. I certainly haven’t, but since I also take oxycodone every day I am an unusual case.

But there’s no reason that I know of to believe stopping LDN would cause withdrawals at all.

Also someone in the comments told OP that they would still have it in their system after three days I don’t think that’s true at all.

It might be dose dependent, but I know for a fact that the 0.5 mg that I take has a half life of like four hours at the most. I usually don’t even wait more than two hours after taking it before I take my first oxycodone of the day and there’s no interaction.

I’m not an expert, I’ve only been taking this medication since 2020, but it improved my situation so much I thought I was in remission. I got excited and I picked up more hours at work and after a month I crashed so hard I thought I had Covid. I didn’t, but I was not able to get back to that level of functional.