The EuroQol foundation's May publication summary included a paper from Quality of Life Research:

Using registry data in Germany, the team investigates #HRQL of adults with spinal muscular atrophy:
https://rdcu.be/dM5h2

The other included papers were:

https://link.springer.com/article/10.1007/s40273-024-01379-7

https://www.valueinhealthjournal.com/article/S1098-3015(24)02369-6/abstract

https://www.valueinhealthjournal.com/article/S1098-3015(24)02367-2/fulltext

#EQ5D #HealthEconomics

Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany