The EuroQol foundation's May publication summary included a paper from Quality of Life Research:
Using registry data in Germany, the team investigates #HRQL of adults with spinal muscular atrophy:
https://rdcu.be/dM5h2
The other included papers were:
https://link.springer.com/article/10.1007/s40273-024-01379-7
https://www.valueinhealthjournal.com/article/S1098-3015(24)02369-6/abstract
https://www.valueinhealthjournal.com/article/S1098-3015(24)02367-2/fulltext